moved that the bill be read the third time and passed.
She said: Mr. Speaker, I am so pleased to be standing in the House today at third reading of my private member's bill, Bill , an act providing for the development of a framework on palliative care in Canada.
The need for palliative care is increasing in our country. What began as a seed with the all-party parliamentary committee on palliative and compassionate care that studied this issue in the 2011 session and brought forward a report, recommendations, and motion to the House, grew into this bill, which has been supported both here and at committee, and is now ready for final consideration in the House.
Canadians need palliative care services now more than ever. Less than 30% of Canadians have access to this vital service, which allows them to choose to live as well as they can for as long as they can.
Bill is the next action required to define the services to be covered, to bring standard training requirements for the various levels of care providers, to come with a plan and mechanism to ensure consistent access for all Canadians, and to collect the data to ensure success. Through the amendments at committee, it will also consider re-establishing the palliative care secretariat.
[Translation]
A growing number of individuals of all ages in Canada suffer from chronic pain or deadly diseases. Palliative care services can replace a wide ranges of services, such as short-term care, home care, crisis care, and psychological or spiritual assistance services.
A palliative care philosophy is needed to meet all sorts of needs through a process that is adapted and patient-centric. Increased demand for home and palliative care will split the cost of health care in four, compared to the cost of short-term care or palliative care in hospitals.
The creation and implementation of a palliative care framework would provide consistent access to high quality palliative care in hospitals, at home, in long-term care facilities, and in nursing homes.
[English]
The bill is timely, since the special committee that studied the Carter decision on medical assisted dying legislation said that without good quality palliative care there would be no true choice. We want Canadians to have a choice.
During discussion in committee, we heard testimony from some of the outstanding Canadians who pioneer in palliative care, people like Dr. David Henderson, a lead physician in palliative care, and Dr. Pereira, another pioneer in palliative care. We heard from national organizations of nurses, hospices, and other palliative care experts. As a result of their testimony, several amendments were brought.
[Translation]
The first amendment tasks the federal government with developing a palliative care framework though the provinces are responsible for implementing it. Of course the federal government will support the provinces in this, and I was pleased to see the $11-billion investment in palliative and mental health care in budget 2017.
The second amendment clarifies the wording of the provision dealing with the training of palliative care providers. Many individuals are active in this field, including health care providers, volunteers in a variety of settings, and family caregivers. The committee felt it was important to better define training for health care providers and other people involved, so it amended the wording of the provision accordingly.
The committee also requested that the provision amending the Canada Health Act to include palliative care as a protected service be removed.
From what the witnesses told us, there were clearly other mechanisms that the federal government was already considering, such as health accords, infrastructure spending reviews, and programs for palliative care and home care.
The focus of the bill was on developing a plan, and there are many ways to do that.
[English]
One of the amendments brought forward at committee was that the proposed framework designed to support improved access for Canadians to palliative care evaluate the advisability of re-establishing the Department of Health secretariat on palliative and end-of-life care. In June 2001, the secretariat on palliative and end-of-life care was established as the first step in Health Canada's work to co-ordinate a national strategy on palliative and end-of-life care.
Nearly a year later, the secretariat brought together over 150 national, provincial, and territorial specialists in the field. This included practitioners, researchers, and those making decisions in palliative and end-of-life care. This summit, the national action planning workshop on end-of-life care, resulted in the establishment of the main priorities or working groups deemed as essential for quality palliative and end-of-life care in Canada.
These five working groups led to the beginnings of the Canadian strategy on palliative and end-of-life care and focused on best practices and quality care, education for formal caregivers, public information and awareness, research, and surveillance. I am very interested to see what an entity similar to the Department of Health secretariat on palliative and end-of-life care could look like today.
The bill now outlines the advisability of re-establishing this secretariat, which could be discussed at length. However, I would like to elaborate on what such a secretariat or regulatory body might look like.
It would be known as the central entity for palliative care information, education, and accessibility in Canada. Setting a national standard, or a national framework, would create consistent care across the country through a variety of mechanisms. Virtual care, home care, palliative care, and hospice care are only a few of the current possibilities.
Working all of these types of different care into community networks would be beneficial to all Canadians and would facilitate the process of finding and transitioning into palliative care. At the heart of these operations would be our health care workers, our nurses, doctors, palliative care physicians, and all the many other caregivers that exist.
An amendment to improve the wording of the need to provide research and collect data on palliative care was approved, as well as an amendment to remove ongoing responsibility for measuring the performance of the framework, since the provinces would have metrics in this regard.
The committee felt that the wording of the bill was adequately clear to cover all Canadians and, as such, no further amendments were required. I want to thank the committee members for their diligent consideration of the bill.
I was able to tell the committee what I would like to see happen when the framework was implemented. In terms of covered services, I would like to see the covered services include pain control, crisis intervention, spiritual and emotional counselling, as well as all services provided in home care and hospice. In an overall patient-oriented palliative care approach, these things are brought forward when needed and do not necessarily apply to the circumstances of every patient.
I would like to see the government leveraging training on palliative care that is already available through organizations like Pallium Canada and many universities. I would like to see us encourage more palliative care specialists to work in Canada, since we only have 200 versus the current need of 600.
I have heard a lot of innovative ideas that have been implemented to accelerate getting palliative care in more remote parts of Canada. For example, there are places where they have trained paramedics and home care workers, and then they are connected to a virtual call centre with palliative care specialists who can guide the care providers. Training at this level really accelerates the actual care that can be provided in remote communities, which is currently a real challenge.
An excellent example of palliative care done right can be found right at home in my riding of Sarnia—Lambton. With an increasingly aging population, Sarnia—Lambton has done incredible work by creating and continuing to expand its senior care network in our communities. With 20 palliative care beds, five palliative care physicians, and our integrated network of home care and hospice care, I believe Sarnia—Lambton is ahead of the pack.
I am proud to say that St. Joseph's Hospice in my riding survives on fundraising currently of $1 million a year, so hopefully we can have the government provide support for these hospices, which provide such a great service. I would like to thank Dr. Glen Maddison who, along with his many colleagues at St. Joseph's Hospice, provided input on this bill.
I believe all Canadians should have access to consistent and quality care, such as is available in my riding. I would like to thank Sarnia—Lambton's many institutions and groups that support and deliver palliative care, such as the St. Joseph's Health Care Society, Bluewater Health Palliative Care Unit, the Erie St. Clair Community Care Access Centre, and of course, St. Joseph's Hospice. Unfortunately, these resources are not abundant everywhere, so I am doing everything in my power to create them in the rest of Canada.
I would also like to have the data we need to take improved action on palliative care over time. We know, for example, that palliative care in home care settings costs about $200 a day versus $1,200 a day for an acute care hospital bed, but we do not know how much the true cost of palliative care averages. Because of the numerous ways people receive palliative care, and the many who have no access, there is a clear lack of information about what the true demand is. Knowledge about which treatments are more effective or are more cost-efficient are also needed. Knowing how many hospices we would need to adequately address the demand is equally important. There are only 30 hospices in Canada versus 1,300 in the U.S., so there is definitely a need.
Using some of the infrastructure money that the government has announced, I would like to see it spent to create Canadian jobs and to build palliative care infrastructure. That would certainly be money well spent. The palliative care framework in Bill will contain the plan, and the government will then determine the pace of spending and where it will be focused.
There has been so much interest in this subject, and such great support from the many arenas, I hope that when I thank people I will not forget anyone.
I want to thank the many organizations that have supported this bill through its journey, such as the Canadian Medical Association, the Canadian Cancer Society, the Canadian Nurses Association, the Canadian Society of Palliative Care Physicians, Pallium Canada, ARPA, The Canadian Hospice Palliative Care Association, with many of their member hospices, like Bruyère continuing care, St. Joseph's Hospice in my own riding, and West Island Palliative Care Residence. I want to also thank the Heart and Stroke Foundation, the Kidney Foundation, the ALS Society, the Canadian Association of Occupational Therapists, the more than 50 organization members of the Quality End-of-Life Care Coalition, and the interfaith groups, including the Centre for Israel and Jewish Affairs, the Canadian Conference of Catholic Bishops, the Canadian Council of Imams, the Evangelical Fellowship of Canada, the Armenian Prelacy of Canada, the Canadian Conference of Orthodox Bishops, the Ottawa Main Mosque and the Ottawa Muslim Association for their ongoing promotion and support of this bill. It is through organizations and groups like these that we can integrate palliative care into the current health care system and make a true difference in the lives of Canadians.
I also want to thank my colleagues on all sides of the House who have spoken passionately, and in support of this bill.
I want to thank the thousands of Canadians who have written letters to MPs and the , and who sent more than 84 petitions to this House asking for palliative care.
I want to thank the for her advocacy on this issue with the provinces, and for putting dollars into the budget to begin the journey to ensure that all Canadians have access to palliative care so they can choose to live as well as they can for as long as they can.
The time is right. This bill has been another fine example of how political parties can come together and work for the common good of Canadians, and it has been an amazing experience being part of it.
With that, I encourage each member of this House to support this bill. People in their ridings and people all across our nation desperately need access to good quality palliative care. This bill is another step in the right direction.
:
Mr. Speaker, I am pleased to be here today to express support for Bill , an act providing for the development of a framework on palliative care in Canada.
Our government believes that Bill C-277 provides us with a timely opportunity to take a leadership role on this issue. I would also like to recognize the efforts of the member for , who had the class and the elegance to send flowers to the minister with whom I feel fortunate to work. I would like to return the favour. I think she did an excellent job on this issue and has put forward a very thoughtful proposal. I sincerely congratulate her.
I also want to congratulate the members who served on the Standing Committee on Health and who studied this bill with a great deal of attention and care.
Our government understands that palliative care is a critically important part of our health care system, providing much needed support to patients and their families at one of the most difficult times of their lives. We also know that Canadians overwhelmingly support a palliative approach to care at the end of life.
Still, studies have reported that as few as 16% to 30% of Canadians have access to palliative care, depending on where they live in Canada.
[English]
There is no question that we must improve palliative and end of life care so that Canadians, irrespective of where they live, have access to timely, high-quality care at the end of their lives. If we are going to be successful in achieving this goal, however, it is paramount that the federal government collaborate with the provinces and territories and draw on the considerable expertise that key stakeholders, health care providers, and caregivers have to offer.
I would now like to take this opportunity to speak to some of the amendments made by the Standing Committee on Health, which I believe strengthen the bill.
The Standing Committee on Health received a number of briefs from key stakeholders on Bill , including the Canadian Society of Palliative Care Physicians of Canada, the Canadian Cancer Society, the Canadian Nurses Association, and Pallium Canada. All of these organizations expressed strong support for the implementation of a federal framework on palliative care. However, they also indicated that a significant amount of work had already been done and should be leveraged in the development of any federal framework on palliative care.
[Translation]
For example, most provincial and territorial governments already have a palliative care strategy, plan or framework in place to support palliative care. Several of the briefs submitted to the committee also identified the Canadian Hospice Palliative Care Association’s “The Way Forward: Towards Community-Integrated Hospice Palliative Care in Canada” as a key resource that could be built upon.
Funded by Health Canada, “The Way Forward” Framework was developed through an extensive consultation process with health care providers, experts, key stakeholders and all levels of government. It provides guidance, best practices, and other resources to help communities and organizations adopt a palliative approach across all settings of care.
Organizations across Canada, including the Government of Alberta, the Canadian Home Care Association, the Canadian Nurses Association, the Canadian Medical Association, have used the framework to guide their efforts to implement an integrated palliative care approach.
I was pleased that the members of the Standing Committee on Health acknowledged this significant body of work and that it will be studied when developing any future framework.
[English]
A number of stakeholders also expressed their support for the priority areas identified in the framework, including palliative care education and training, support for care providers, and data collection and research. Each of these elements is widely understood to be essential in improving access to high-quality palliative care services by patients and their families.
Our government has been very clear in expressing its support on these issues. For example, the government has provided $3 million in funding to Pallium Canada to support training in palliative care to front-line health care providers. This initiative has developed a range of educational materials, trained trainers, and facilitated sessions to increase the palliative care capacity of health care providers.
[Translation]
We also recognize the critical role that unpaid caregivers play in the care of so many Canadians.
As announced in budget 2017, the introduction of the new Canada caregiver credit and a new EI caregiving benefit will provide additional support to Canadians caring for critically ill or injured family members.
[English]
Supporting the development of a solid evidence base has also been a clear priority for our government. Through the government's research funding arm, the Canadian Frailty Network centre of excellence is receiving $23.9 million in support over the next five years to facilitate evidence-based research, knowledge sharing, and clinical practices that improve health care outcomes for frail older Canadians, their families, and caregivers. It is my sincere hope that these foundational investments can be leveraged to guide future work in this area.
[Translation]
Our government is also committed to working co-operatively with provincial and territorial governments to improve the quality and availability of palliative care for Canadians.
While the federal government can provide leadership through the implementation of a framework to help support and unify efforts to make positive change, it is the provinces and territories that have primary responsibility for the delivery of health care services, including palliative care.
[English]
When first introduced in the House, Bill called on the to develop and implement a framework designed to give Canadians access to palliative care provided through hospitals, home care, long-term care facilities, and residential hospices. The bill is significantly strengthened by the changes made at committee to indicate that the federal framework on palliative care developed through Bill C-277 would support improved access to these services by Canadians. While the federal government is well positioned to complement and bolster the important work under way across the country by provincial and territorial governments, this wording better reflects the constitutional realities of the Canadian health care system, as it is the provinces that deliver the services on a daily basis.
[Translation]
The amended bill being considered by the House today no longer requires an evaluation of “the advisability of amending the Canada Health Act to include palliative care services provided through home care, long-term care facilitaties and residential hospices”.
While this would no doubt highlight the importance of palliative care within the health care system, I would agree with the briefs sent to the Standing Committee on Health by the Canadian Nursing Association and the Canadian Society of Palliative Care Physicians, expressing concern over potential amendments to the Canada Health Act as part of this bill.
Given the complexity of the Canada Health Act, there is a real risk that this measure would lead to lengthy delays in the implementation of the framework, when more immediate action is needed. That is definitely not our objective, nor that of the member for , I am sure.
These organizations also expressed concern that the review on the state of palliative care, as prescribed by section 4 of this bill, may not necessarily result in increased access to community and home-based palliative care services, services for which Canadians have expressed the greatest support.
[English]
With these considerations in mind, the removal of this point will focus attention to where it is most needed, the development of a framework which would support provinces, territories, and stakeholders in their front-line efforts to improve palliative care.
I would like to thank the House for the opportunity to reflect on some of the important changes that were made to Bill , which I believe significantly strengthen the proposed framework.
I will conclude as I started by thanking the member for for putting forward such a well-considered proposal, and offer my support and the government's support for the amended bill currently before the House.
:
Mr. Speaker, I am pleased to rise in the House today to speak to Bill . I would like to thank the sponsor of the bill for her work and the members of the Standing Committee on Health for this new version.
The New Democrats have long supported and advocated for the idea of a Canadian palliative care strategy to provide end-of-life care to Canadians. With Canada's aging population taxing our health care system, the need for a coherent, coordinated, nationwide palliative and end-of-life care strategy is becoming more acute. This issue affects and will continue to affect us all directly or indirectly.
I was pleased to see these words in the new version of the bill:
2(1)(g) evaluates the advisability of re-establishing the Department of Health’s Secretariat on Palliative and End-of-Life Care.
I would remind members that we are in this situation because, when the Conservatives were in power, they decided to abolish the secretariat on palliative and end-of-life care and stop work on the palliative and end-of-life care strategy. We therefore missed an opportunity to make incredible advances for the well-being of patients, their families, and our society. Those decisions, combined with 10 years of inaction on this issue, have had a negative impact.
I hope that, with this bill, the Liberals will take this opportunity to restore the secretariat on palliative and end-of-life care and that it will be given adequate funding. I also hope that health care professionals will have the resources needed so that they can provide services across the country, because as we all know, there is a great and ever-increasing need.
I was able to gauge the extent of these needs when I had the opportunity to sit with my colleagues from the House and the other chamber on the Special Joint Committee on Physician-Assisted Dying. At the hearings, the vast majority of witnesses and experts told us how vitally important accessible and good quality palliative care is to Canadians. I was made aware of the fact that across the country only 16% of Canadians have access to quality palliative care. Thus, one in ten Canadians have access to quality palliative care. One in ten is too little, far too little.
The NDP respects the fact that a good part of health services are provided by the provinces. However, the federal government has a fundamental role to play when working with them. For that reason, we have been asking for a long time for a national palliative care strategy that respects provincial and territorial jurisdiction, but that seeks to find way to provide adequate palliative care services for everyone.
At the Special Joint Committee on Physician-Assisted Dying, we made informed and necessary recommendations on palliative care that called for reestablishing the secretariat on palliative care and funding, creating a properly funded national palliative and end-of-life care strategy, and support for family caregivers and better compassionate care benefits.
These recommendations have to be considered. They respond to the concerns of Canadians. As everyone probably knows, National Palliative Care Week is from May 7 to 13. It is happening right now.
I want to take this opportunity to thank all those who work with our constituents day after day. I am talking about health professionals and volunteers who devote their time to this. Their commitment is essential and I thank them from the bottom of my heart. I want to take this opportunity to specifically thank the health professionals, agencies, and organizations, and the many volunteers in the riding of Saint-Hyacinthe—Bagot who work directly or indirectly with the patients. The role these people play in providing high quality palliative care cannot be measured. They provide patients and their families the support they so desperately need during one of the most difficult times in their lives. The palliative care that they provide whether at home, a palliative care centre, or a hospital, is indispensable.
In my riding, Saint-Hyacinthe—Bagot, countless organizations do exceptional work.
These organizations offer palliative and respite care. Others raise funds to ensure that those who need quality palliative care can get it. One of these is the Hôtel-Dieu-de-Saint-Hyacinthe. The centre's palliative care team has been providing palliative care for 30 years. Hundreds of people go to the nursing home to live out their last days. It is around 500. The hospital has hundreds of beds, but only 12 palliative care beds.
In Acton Vale, the Centre d'hébergement de la MRC-d'Acton has just one palliative care bed. All of the people who work with patients and their families, on user committees and elsewhere, are doing exceptional work, and I am deeply grateful to them.
In support of Hôtel-Dieu residents, the Fondation Aline-Letendre will be holding a spaghetti supper and “Rock à la Sylvain Lussier” party on Saturday, May 13, at 7 p.m. in the Centre communautaire Douville in memory of Lucie-Anna Gaucher and Jeanne Palardy, who both received palliative care at the Hôtel-Dieu-de-Saint-Hyacinthe.
This Saint-Hyacinthe organization does crucial work in our community. I want to recognize the incredible work of its executive director, Christine Poirier, its volunteers, and its board members. Since it was created over 20 years ago, Fondation Aline-Letendre has given over $7 million to the Hôtel-Dieu-de-Saint-Hyacinthe. I am also thinking of the staff and volunteers at Les Amis du crépuscule, a community organization that provides assistance to people receiving palliative care and later to their grieving families. We also have the Maison Marie-Luce-Labossière, which provides support and assistance, as well as accommodations, in a safe, peaceful environment to people suffering from “preterminal” cancer, among others. The Maison Marie-Luce-Labossière also has spaces for short-term stays in order to allow caregivers a period of respite during the summer months.
Like me, the members of these organizations believe that a national palliative care strategy would have a positive impact on patients and their families, and that it is high time Canada developed such a framework for palliative care.
The growing demand for palliative and end-of-life care poses a major challenge for our society. The bill before us today encourages us to think about existing frameworks, strategies, and best practices in palliative care. In that regard, I would like to acknowledge the exceptional work that Quebec has been doing for the past several years to deal with this reality and provide appropriate services to Quebeckers. Quebec created a palliative and end-of-life care development plan in 2015, which builds on other existing measures, such as the end-of-life palliative care policy. Quebec is a leader in this area and we should learn from its example. There is also another inspiring initiative in this regard, and that is Motion No. 456, which was moved by my NDP colleague on October 31, 2013. The motion sought to create a pan-Canadian strategy on palliative and end-of-life care in co-operation with the provinces and territories.
New Democrats have been working with many stakeholders and organizations for a long time in order to develop and implement a palliative care strategy. We are proud that the member revisited the NPD's motion on palliative care, which was adopted in 2014. The motion was adopted in the House three years ago, but no real progress has been made on this vitally important issue since then.
That is why it is high time that we move forward without delay. The federal government must demonstrate leadership and take immediate action to establish a palliative care framework that will give all Canadians better access to quality palliative care.
I would like to once again thank the sponsor of this bill, which I urge all of my colleagues to support. We should be in unanimous agreement in the House on this subject.
:
Mr. Speaker, it truly is an honour to rise in the House today to speak to an issue about which I am very passionate. I wanted to have the opportunity to speak to this important legislation, brought forward by my colleague the member for , who is seeking to develop a framework for palliative care in Canada. This is an extremely important issue.
I enjoyed listening to the speeches from my colleagues, but I would like to start my speech off on a different tangent. I would like to look back to a very crisp winter day in 2012. In my previous career, I was the editor of a local community newspaper. I distinctly remember getting a phone call one afternoon asking if I would be willing to come down to the Foothills Country Hospice to cover an interesting story that was unfolding. It was a story about a man, Greg Garvan. He was in the Foothills Country Hospice, unfortunately, with a rare form of cancer. Knowing he was in his final days, he was really hoping to have one thing before his life ended. He was hoping to have one last visit with two of his favourite companions. Mr. Garvan was a horseman. He enjoyed the country living in rural southern Alberta, and certainly as any rancher and cowboy would know, he wanted to spend some time with his friends. His two friends were his two horses, Kiwi and Russell. The Foothills Country Hospice staff on that very cold winter's day wrapped Greg up in a blanket, rolled his bed out into the parking lot of the hospice, and there were his two horses, Russell and Kiwi.
It was very difficult, I must admit, to take photos that day and talk to the staff without having a tear in my eye. There are certainly not too many other staff or institutions that would have taken that kind of effort and passion and shown how much their patients and patients' families meant to them, to ensure they were able to make the dying wish of one of their friends come true. We have photos of Russell and Kiwi snuggling right up to Greg, wrapped in his blanket in his bed, in the parking lot of the Foothills Country Hospice.
To cap off the day, Greg's mother, who is from New Zealand, was staying in Okotoks. This was in early December. The staff at the hospice held an early Christmas dinner for Greg and his family, at the hospice. I am sure that was a memorable day in what was a difficult time for his family. It certainly was not one they will soon forget.
Those of us who do not have the fortune of having a hospice in our communities certainly would not have the opportunity to understand the wonderful things that hospice staff can do. I am very honoured that we have the Foothills Country Hospice in our community.
That really highlights the debate today. When we have an opportunity to have a facility like a hospice, with the ability and the things it is able to do for its community and its patients, I find it unfortunate that not everyone in Canada has the opportunity to experience that as an end-of-life option. The stats I have seen show less than 30% actually have access to a hospice facility. That is truly unfortunate.
Some of my colleagues have talked about how this really came to a head, and it is how I became more interested in the hospice facility and its lack of access for other Canadians. This was a very prominent issue during the debates on doctor-assisted dying. It was a very difficult issue for my constituents. I held four town hall meetings throughout my riding in Foothills and southwest Alberta. I had hundreds of people attend the town halls. I also sent out a survey to my constituents asking them how they felt about the doctor-assisted dying legislation. I had 4,000 responses to that survey, which was a very high response rate, along with the carbon tax.
My constituents were very torn on how they felt about doctor-assisted dying. It was a very difficult issue. Some were adamantly opposed. Some were adamantly in favour. The one theme that went through all my town halls and through those surveys was the importance of offering palliative care as part of that legislation.
If the government was to provide doctor-assisted dying, my constituents wanted to ensure there were resources in place and that a framework for palliative care would also be a part of that legislation.
It was very clear that my constituents wanted some options. One of those options, if we were truly going to have doctor-assisted dying, was that Canadians had to understand that they had another option, and that option was end-of-life care through hospice.
What has made this so profound and so loud and clear in my constituency is that we have the Foothills Country Hospice. Many other constituents and many other Canadians do not have that.
We are certainly blessed in my constituency to have the hospice, but also to have the people who work so hard to make it a reality. It has been about 10 years since the hospice was opened, but it has been almost 20 years since my constituents worked hard to make this project come to fruition.
I really want to take the opportunity to thank a few people who were instrumental in ensuring this hospice became a reality in rural Alberta, people like Dr. Eric Wasylenko and his wife Louise, David and Leslie Bissett, Jean Quigley, Dr. Jim Hansen, Doug and Susan Ramsay, Beth Kish and Dawn Elliott, Mark Cox, and the Council of the Municipal District (MD) of Foothills in the town of Okotoks. These people worked extremely hard to make this project a reality.
The annual budget for the Foothills Country Hospice is about $2.8 million. The province has picked up a significant part of that budget, but the community is also being asked to raise close to $1 million or more each and every year to ensure the hospice is able to operate. One of the wonderful stories about the hospice is to see the community buy into it and each year come forward to raise that type of money. It also shows that this is not an easy task, when it comes to having a hospice in a community.
We cannot have these types of facilities and the wonderful people who work in them without support from all three levels of government. That is why this private member's bill is so important. We need to develop a framework to ensure we can have the resources there to offer hospice care to Canadians, but also to ensure we have the resources there to make it a reality. That is what we are missing.
I know on both sides of the floor, during the doctor-assisted dying debate, many of us wanted an amendment as part of that legislation to ensure there was funding available for hospice. I am encouraged to see support among all parties in the House to ensure this becomes a reality. It is one thing to talk about it, but we have to ensure we provide the resources and the commitment as a federal government. As we proceed with doctor-assisted dying, one of the most important parts of that is also to ensure we have a framework for hospice care and a commitment that it is funded.
I spent a lot of time talking about the Foothills Country Hospice in my riding. I thought it was important to put a personal face on this service. I know many of us talk about hospice care and that it is an important option for that end of life. I have been through it many times, I have toured, and talked to the nurses, the doctors, and the many wonderful volunteers and staff that take their time to work there. It is hard to explain a hospice unless people have had an opportunity to experience it. Unfortunately, that is not something many of us want to experience, but it is a life-changing option.
As parliamentarians, we have to get across the fact that this truly brings a new definition to end-of-life care, that there are ways to make those difficult times as comfortable as possible for people and their families. If we are truly to have doctor-assisted dying, we must also have that other option, palliative care.
I want to again thank my colleague from for all the work she has done, which has been yeoman's work, to make this a reality. I look forward to working with my colleagues on both sides of the floor to ensure this becomes a reality.
:
Mr. Speaker, I am pleased to be here today to address Bill , an act providing for the development of a framework on palliative care in Canada and to discuss our government's commitment to improving palliative and end of life care for all Canadians.
This bill comes at the right time in our national dialogue on palliative care, and I would like to recognize the efforts of the member for in moving this discussion forward.
I had the opportunity to review this legislation with my seniors' council in Coquitlam—Port Coquitlam at our last meeting. I want to thank the members for their input and for helping me better understand just how important it is for this bill to proceed.
Our government knows that the quality and availability of palliative care is an issue of great importance to Canadians. A Harris/Decima survey found that more than 90% of Canadians believe that palliative care improves the quality of life for both patients and their family members. Studies have shown that patients who receive palliative care services are happier, more mobile, and, in some cases, live longer than patients who do not.
The recent legislation on medical assistance in dying has amplified the public conversation on options for care at the end of life. While medical assistance in dying is only one potential option at the end of life, experiences in other countries suggest that only a fraction will seek it.
[Translation]
It seems that many Canadians who could benefit from palliative care do not receive it. For example, Health Quality Ontario found that two in five Ontarians had not received palliative care services at the end of life in 2015.
[English]
Palliative care is a priority for our government, and I support the creation of a framework to guide our work. I was pleased to see the amendments made by the Standing Committee on Health so that the framework takes a more targeted and integrated approach and builds upon the important work already under way to improve palliative and end of life care in Canada.
There is a wide range of promising initiatives established in provinces and territories as well as in stakeholder organizations in the health care sector. These initiatives touch upon many of the elements put forth in this bill, including identifying training and education needs for health care providers and other caregivers, providing supports for care providers, facilitating access to care, and promoting research and data collection.
[Translation]
The federal government recognizes the advantages of and the growing need for palliative care and has funded a series of strategic initiatives in order to establish key fundamental approaches and to address key issues.
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For example, the Canadian Partnership Against Cancer, an independent national cancer organization funded by the government, has convened a group of palliative care experts from across the country to create the palliative and end of life care initiative. The network includes representatives from every province and territory, officials from provincial ministries of health, representatives from both professional medical organizations and patient advocacy groups, and patient and family representatives.
Through this venue for national conversations, the palliative and end of life care initiative is working to improve coordinated support for patients and families through the education of health professionals, patients, and caregivers. The network is also increasing access to evidence-based, integrated, high-quality palliative care services that align with patient preferences.
Apart from the network, the Canadian Partnership Against Cancer has also funded a series of studies focused on the experience of palliative care from the patient and family perspective. This patient-centred approach focuses on the importance of early and ongoing assessments of the expressed wishes of the patient and family for symptom management and quality of life. The Canadian Partnership Against Cancer has been expanding the visibility of its work by distributing its findings widely so as to bring this evidence to the broader health care community. By emphasizing the centrality of the patient and family, the Canadian health care system can provide end-of-life care that is responsive to patient needs and provide an improved experience for patients and families going through the most trying moments of their lives.
The Canadian Foundation for Healthcare Improvement is another national organization funded by our government to help identify proven health system innovations and accelerate their spread across Canada. In recent years, one of its priorities has been to evaluate and disseminate data on best practices with respect to palliative care services. The Canadian Foundation for Healthcare Improvement's programming in palliative and end-of-life care is well under way and focuses on identifying and validating high-impact innovations and practices ready to be spread and scaled up across the country. For example, in February it launched a pan-Canadian call for innovations to identify and validate high-impact palliative care models, practices, and tools. Projects identified as having the greatest potential impact will be featured at a forum of experts, decision-makers, and health administrators in June to discuss how these innovations can be scaled up and spread to other organizations and jurisdictions.
I would also like to highlight the important work being undertaken by Canadian researchers to understand the current status and potential of palliative care in Canada. Since 2011, the government has invested over $546 million with the Canadian Institutes of Health Research to support research on aging, including palliative care or related late-life issues. One area where the Canadian Institutes of Health Research is supporting a wide variety of research is through its team grants in late-life issues. In the past, these research projects have examined some of the most pressing issues on palliative care in Canada, including improving knowledge uptake across providers and institutions, appropriate protocols for transferring patients between different levels of care, and developing ways to measure the quality of patient experience.
Another example of CIHR research is the improving end-of-life care in first nations communities project. Led by Dr. Mary Lou Kelley from Lakehead University, this project was designed to improve the end-of-life care in four first nation communities through developing a culturally appropriate approach to palliative care. Providers in each of the communities chose a series of clinical, educational, or administrative interventions to build local capacity, with each activity being evaluated for its contribution to developing palliative care. The four communities created locally designed and controlled palliative care programs. This demonstrated the feasibility of providing local palliative care at home in first nation communities, the effectiveness of first nations community capacity, and the associated benefits of enabling among first nations people the choice to receive palliative care at home. Furthermore, the project produced a series of reports and resources for first nation communities and the government, with recommendations that will be critical for the improvement of palliative care in first nation communities and nationwide.
To build on this work, our government has now provided funding to work with Lakehead University to provide coaching and mentoring support to 24 first nation communities in Ontario who want to implement palliative care services within their community. The message is clear: Canadians want access to high-quality palliative care.
Based on these existing foundations and accomplishments, our government is poised to play an important role in helping Canadians receive the most appropriate, timely, and compassionate care at the end of their lives.
I am proud of the work our government has already supported in this area and the significant strides we have seen in the provinces and territories, as well as among stakeholders in the health care sector. I look forward to continuing to work toward improving access to quality palliative care services for all Canadians.
The member for should be commended for her work on this and for bringing this legislation forward. I also appreciate the work my seniors' council did to prepare me for this debate.