I will carry on.
[English]
When you're not using the earpiece, place it face down on the sticker placed on the table for this purpose. Thank you for your co-operation.
In accordance with our routine motion, I'm informing the committee that all remote participants have completed the required connection tests in advance of the meeting.
Pursuant to Standing Order 108(2) and the motion adopted on April 11, 2024, the committee is continuing its study of breast cancer screening guidelines.
I would like to welcome our panel of witnesses.
Colleagues, you will notice from the notice of meeting that we've arranged the witnesses in two two-person panels. This was done to accommodate the schedule of the witnesses and to ensure the maximum amount of time to question each one.
From 11 to 12 today, we have, appearing by video conference, Dr. Jean Seely, professor of radiology, faculty of medicine, University of Ottawa. With us in the room, from the Canadian Cancer Society, are Kelly Wilson Cull, director of advocacy, and Ciana Van Dusen, advocacy manager of prevention and early detection.
We'll begin with Dr. Seely online for her opening statement of up to five minutes.
Welcome to the committee, Dr. Seely. You have the floor.
:
Thank you very much, Mr. Casey and members of the committee, for the opportunity to comment on the draft Canadian task force breast cancer screening guidelines.
As a breast imaging specialist, I diagnose women along their entire cancer journey. I detect breast cancers through screening or diagnose them after a woman presents with a symptom of a palpable lump. I perform biopsies and I localize breast cancers for the surgeons. I interpret the imaging of women diagnosed with late-stage or recurrent breast cancer. I speak to women at all stages of breast cancer. A screen-detected cancer found before symptoms occur is a very different diagnosis from one found because of symptoms at stages 2 or 3, or when it's incurable, at stage 4.
The task force falsely equates an additional imaging test as a harm comparable to a delayed diagnosis of late-stage breast cancer. My patients attest that the severity of the harm of a delayed diagnosis vastly exceeds any stress associated with any additional imaging test. Equating these harms is a false equivalency.
The recent draft guidelines released by the task force for breast cancer screening have sparked significant concern within the medical community. As an expert included on the evidence review panel, I find their recommendations profoundly disappointing. These guidelines ignore robust and recent evidence supporting the initiation of screening at age 40, a standard now adopted in the United States and numerous other countries.
The task force recommendations are anchored in studies dating back 40 to 60 years, utilizing obsolete technologies like film-screen mammography. As experts, we recommended against including these outdated data, which overlook monumental advances in breast cancer treatment, including hormone receptor-positive treatments like tamoxifen, less invasive surgical options like lumpectomy and sentinel lymph node biopsy, and modern immunological and chemotherapeutic agents that have revolutionized breast cancer management. The task force working group interfered with our expert recommendations and insisted on using these studies.
The task force approach diminished the importance of recent observational studies, involving millions of women, comparing screening to no screening with updated diagnosis and treatment. These studies include one Canadian study of over 2.7 million women screened over 20 years, which demonstrated a 44% reduction in breast cancer mortality in women who began screening in their forties. Similar studies in Sweden show even greater benefits, with reductions in mortality of 50% to 60% in women aged 40 years and older.
Furthermore, the task force used the old trials to evaluate cancer stage at detection and therefore missed the benefits of early-stage detection with up-to-date screening technology. The improvements in screening technology in the past 15 years have improved breast cancer detection by 20% to 40%.
Breast cancer is a devastating diagnosis, but the harms are mostly preventable when it is detected early. The survival rates are starkly different across stages—a nearly 100% five-year survival rate for stage 1 detected through screening as compared with only a 22% five-year survival rate at stage 4, when the disease has become incurable. Furthermore, the treatment is much less intensive and costly when treated early. Stage 1 cancer costs an average of $30,000 Canadian to treat, as compared with up to $500,000 for stage 4. Systematic screening programs in Canada find that 87% of breast cancers are stage 1 at diagnosis.
The task force disregarded data that showed women of a race or ethnicity other than white are more likely to be diagnosed with breast cancer in their forties. A one-size-fits-all approach to recommending screening only starting at 50 discriminates against these women and contributes to their twice-higher rates of advanced breast cancer due to delays in screening, access to screening and delays in diagnosis.
The task force acknowledged that women with dense breasts were twice as likely to develop breast cancer as women with non-dense breasts. However, it failed to recognize the reduced sensitivity of mammography in these women, which drops from 90% in women with non-dense breasts to 60% in those with the densest breasts. The task force ignored high-quality randomized studies that showed adding screening with MRI reduced interval cancers—cancers diagnosed by symptoms after a normal mammogram—by 80% and by 50% in women screened with supplemental breast ultrasound. These have been shown to be evidence-based acceptable surrogates for breast cancer mortality, but the task force did not consider them despite an expert recommendation.
We must demand that our health policies be reflective of the latest scientific evidence and best practices in medicine.
Thank you very much for your attention.
My name is Kelly Wilson Cull, and I'm the director of advocacy. With me today is Ciana Van Dusen, who's the advocacy manager of prevention and early detection.
The Canadian Cancer Society is the voice for people who care about cancer in Canada. As a part of our commitment to improving and saving lives, we are pleased to provide recommendations on breast cancer screening.
Cancer is the leading cause of death in Canada. It is predicted that two out of five people will be diagnosed with cancer in their lifetime, and approximately one in four will die of the disease. In Canada, an estimated one in eight women is expected to be diagnosed with breast cancer during their lifetime. Breast cancer is the most common cancer among women in Canada, and despite fewer women being diagnosed with breast cancer under the age of 50, it remains the leading cause of cancer death for people in Canada aged 30 to 49.
While data from a new study shows that breast cancer incidence rates for women in Canada in their forties have increased over the last 55 years, overall, breast cancer incidence and death rates in Canada are trending downwards as early detection, treatment and care continue to improve. However, we must acknowledge that international data indicates that more Black, Asian and Hispanic women with breast cancer are diagnosed before the age of 50 and are more often diagnosed with a later-stage disease compared with other women. This means that waiting to start screening at age 50 could result in missed opportunities for early detection among women in these communities.
Evidence from trials, modelling studies and real-world data has shown benefits from regular breast cancer screening starting at age 40. Timely access to breast cancer screening is critical to finding breast cancer early, when treatment is most likely to be successful. We continue to hear from people living with breast cancer that they do not feel represented by the current guidelines because they do not reflect their lived experiences. Furthermore, according to a national survey, most respondents support expanding systematic access to breast cancer screening to include women aged 40 to 49.
CCS supports expanding access to breast cancer screening for women and trans, non-binary and gender-diverse people aged 40 to 49 at average risk of developing breast cancer. We also need to ensure that there is clear guidance for people who have an elevated or high risk of developing breast cancer, such as people with certain genetic mutations, a family history or dense breasts.
I will turn the remarks over to Ciana.
:
Thank you, Ms. Wilson Cull.
A growing number of provinces in Canada have started offering cancer screening services starting at the age of 40 or have made announcements about expanding access to these services. While the provinces and territories are looking at the new national guidelines, the Canadian Cancer Society, or the CCS, is asking remaining administrations to include women 40 to 49 at an average risk for breast cancer in their breast cancer screening program. This change also reflects the new evidence that was released between the last update of the Canadian guidelines in 2018, and those that were presented a few weeks ago.
The data on participation in breast cancer screening programs in Canada will soon be updated by Canadian Partnership Against Cancer. For now, our data goes back to before the pandemic and the breast cancer screening programs do not meet the national objective of 70% participation. It is important to increase capacity to meet people's needs in Canada, while taking into account the needs of underserved populations, specifically individuals who are part of racialized or indigenous communities, as well as low-income individuals or those living in a rural or remote region, and adapting the services accordingly.
What is more, the CCS recommends that the federal government invest more in research in order to expand knowledge on screening and the risks associated with cancer. It is also important to fill the gaps in data in order to have a better understanding of the incidence of cancer in Canada. The Pan-Canadian Cancer Data Strategy and the Pan-Canadian Health Data Charter describe interesting possibilities for improving the data in the country.
Governments need to invest in breast cancer prevention, early detection and treatment and in reducing the effects of the labour shortage. These investments include many investments in human resources, in integrating new technologies, in digital infrastructure and in modernizing care trajectories to meet Canadians' current and future needs.
Thank you for taking the time to listen to our recommendations. We look forward to continuing to work together to better support people affected by cancer because it takes society as a whole to tackle cancer.
Thank you.
:
Thank you very much, Chair.
Thank you to our witnesses for being here for this very important topic.
What we've heard very clearly is that in spite of what the task force has said, the science is perhaps changing very rapidly. It's a dynamic environment. Some science is not being taken into account, which is very discouraging.
Dr. Seely, I know you don't have a crystal ball—or if you do, I'd be happy to borrow it now and again—but the task force has put out its draft guidelines. Do you think there's a way, with the voice of this particular committee and your voices added, that the draft guidelines from the task force can be changed to be more reflective of current science?
I think you used the term “mixed messages”, and that's part of the challenge we're experiencing as a result of these guidelines. We have provinces and territories across Canada with different approaches to breast cancer screening. What that has inadvertently created is inequity: Where you live dictates what your breast cancer screening access looks like.
From the Canadian Cancer Society's point of view, we are urging all provincial governments to reduce access to systematic screening starting at age 40. We recognize that some provinces—I'm from Nova Scotia—have access to self-referral, for example, and have for some time, whereas provinces like Ontario have committed to rolling this out but aren't quite there yet.
Where you live shouldn't dictate your access to breast cancer screening in Canada. We want to ensure that there's an equitable approach. At this point, we know that provinces are taking their cues from the task force, so we need leadership and a strong infrastructure to ensure the provinces are getting the most accurate, up-to-date, comprehensive guidelines. Then they can make the right decisions for their constituents.
:
Thank you very much, Chair. I'll be sharing my time with Dr. Powlowski, if that's okay with you.
I want to thank all of the witnesses for being here, particularly Dr. Seely, whom I had the opportunity to meet a little over a year ago on precisely this issue. I'm thankful to her for the guidance that she gave me on the task force work.
Since that time, the issue of breast cancer and screening has become personal to me, as my mother was diagnosed with breast cancer. Although she's an older woman, it was screening that caught her cancer in its very early stages, and she's on an incredible journey of recovery and living her full life.
I must say that I feel very frustrated by the draft guidelines the task force has issued and I am thankful that this committee is doing the important work and listening to witnesses.
Dr. Seely, when we met, you spoke about a study you had done, I believe in 2023, that looked at how screening of women aged 40 to 49 impacted net survival. Would you be able to elaborate for us on some of the key findings and why you believe the screening age should be lowered to 40?
:
Thank you very much, Mr. Naqvi. I'm sorry your mother was diagnosed, but I'm very grateful that she was screen-detected, because it's a very different diagnosis.
As noted, there is a geographic difference in screening programs in the country. Some women who live in the provinces of British Columbia and Nova Scotia are able to participate in screening programs, and others are not. We were able to look at over 55,000 women diagnosed with breast cancer in Canada over a 10-year period. What we could see is that the women who lived in a province where there was a screening program offered for women in their forties had a significant increase in the 10-year net survival of their breast cancer, which was on par with some of the chemotherapeutic agents we use for every woman diagnosed with a hormone receptor-positive cancer.
We found there was a significant decrease in breast cancer mortality for women living in the provinces that had screening programs. What we didn't know is how many women in those provinces were screen-detected, because that's not something we currently track. However, we could see a marked improvement. It correlated with a study we had done previously that showed the stage at which breast cancer was diagnosed was significantly lower—stage 1—if they lived in those provinces, compared to the ones that did not screen. It also had a benefit for women who were older, in their fifties, and increased improvement in their stage and overall survival.
I also want to thank the witnesses for their informative testimonies.
Dr. Seely, the working group recommends not proceeding with systematic mammography screening for women 40 to 49. This group emphasizes the informed choice of the patient, which involves an equally informed discussion between the patient and her doctor on the pros and cons of screening.
A study published in 2022 mentions that the obstacles to an individualized breast cancer risk assessment included knowledge of the risk factors and risk assessment tools. It also mentioned that doctors were having a hard time identifying breast cancer risk factors outside of family history, such as reproductive factors, ethnic origin or breast density. The study shows that some doctors lacked the skills to calculate the overall risk of breast cancer.
Do you not think that the doctors' lack of knowledge of risk factors and assessment tools can influence the informed decision that the patient should be making?
:
Thank you for your question, Mr. Thériault
[English]
There are three factors to that answer.
One is that 80% of women in their forties who get breast cancer have no risk factors. This is why we don't recommend a risk-based approach to screening. We recommend systematic screening starting at age 40. We would miss too many cancers otherwise.
There is a second point, which is that there's a tremendous lack of family physicians. In Ontario, over two million people do not have a family physician. This poses a very big obstacle to getting access to screening and to having a discussion to allow them in.
Third, you mentioned a very good point. There is a lack of awareness of the risk factors. Even women who should be in high-risk screening are not advocated for to have screening earlier than age 40, when they should be in a high-risk screening program.
These are obstacles that the task force is placing with these recommendations, and they are going to accentuate the confusion and disparities we see, particularly among some of the racial groups and ethnicities I mentioned. It's a very important point.
Thank you, Dr. Seely, for all your testimony today.
We've definitely seen a reaction from the community. We've seen a reaction from women, who have a hard time being believed on many things but certainly on their health. I hear your comments about going back to the drawing board. It seems like this study is perhaps antiquated and needs to be modernized.
Dr. Seely, I'm going to ask you about what special considerations you would want if this task force goes back to the drawing board, but before I do, I want to share my personal story.
I was diagnosed with breast cancer in my forties, and I think people forget that we have children. Most women who are diagnosed with breast cancer in their forties have children. My youngest was in grade 6 at the time, and I think some of the visceral response we've seen from the community is due to the fact that the task force didn't seem to consider what impact breast cancer has on the people who experience it.
It took me two years for my doctor to get me screened. You mentioned the supplementary screening. I have dense breasts, and in the end, the cancer was close to my pectoral muscle and needed an ultrasound to be found. It was lobular, not ductal, so it grew in sheets and could not be felt as a lump. I chose to have a double mastectomy because of the stress of not being believed for two years and then being at stage 2 before they found it. Having to tell my children was very difficult.
Terry Fox is from the Tri-Cities, where I am in Port Coquitlam. Their run is in Coquitlam, and every year the students of SD 43, our school district, do a Terry Fox run. To see your sixth-grader put your name after “I'm running for” is something I wouldn't want any woman to see.
I'm sorry; I'm upset today. I didn't think I would get upset.
I wonder if you could let us know what the new technologies are. What is the task force missing? What are the special considerations they need to remember when the government sends this back for reconsideration?
:
Thank you so much, Ms. Zarrillo. I'm so sorry about your experience.
I hear this and see this almost every week, and you are not alone. There are many women like you, and we're here today to do a better job for women in their forties, when they are in the prime of their lives and are productive members of society and parents.
Breast cancer doesn't just affect a woman; it affects the whole family. It affects grandparents, spouses and children, and this is why we are working to change these guidelines.
These guidelines cause tremendous confusion, and unfortunately, even using the estimated number of one per thousand lives saved by screening but lost if you don't screen women in their forties in Canada, we estimate this translates into 400 to 600 women's lives lost per year. This has a huge impact on Canadian society.
The technology has improved dramatically. I mentioned the 20% to 40%. This is based on digital mammography, which we now use and is particularly better for women with dense breast tissue. We also need digital breast tomosynthesis, which is another technology shown to increase cancer detection rates by up to 40%. It is being used in multiple centres in the United States and is slowly being used in Canada.
Reducing cancer and diagnosing it at stage 1 are possible. We now know from randomized trials that we can screen women with dense breasts with an MRI and reduce their interval cancers by 80%. They are diagnosed at stage 1.
This is all the technology we can use to inform up-to-date evidence.
I want to thank MP Zarrillo for sharing. That touched me. There aren't a lot of topics that get me really teary. I'm generally a very strong person who can hide a lot of emotion, but on this subject, I don't hide a lot of emotion.
My mom would have been one of the 400 to 600 women who would still be alive today had more screening been available. My mom passed away at 49 years old. She was diagnosed with breast cancer when she was 48 years old. She left behind four little kids. I was the oldest, and I had to take on a lot of extra responsibility through her chemo, through her radiation, through her palliative stage and then, eventually, after her passing. This isn't something that I wish on anybody. This isn't something that I hope another person ever has to struggle with.
I am angry. I'm angry with the task force. I think these guidelines fail to recognize the value of the lives of women and their families and the fear they have created by saying that additional screening is somehow not valid.
I want to open it up to you, Dr. Seely. I really appreciated your piece. You talked about the fact that you're seeing more women pass away within one year of diagnosis. What do you think we could do, beyond what the guidelines have put forward, to make things better for the outcomes of women?
:
I'm so sorry for your loss. Probably every one of us has a member of our family...but it's even more potent when it's your mother.
As to recommendations, women should have a risk assessment for breast cancer, with informed and up-to-date tools to recommend what their next step should be, starting between the ages of 25 and 30. This is in alignment with the European guidelines and the American guidelines, which suggest that we should be thinking about breast cancer as early as 25 to 30. We should be recommending systematic screening starting at age 40. We should be allowing self-referral to a screening program. We have extremely good-quality screening programs in Canada.
This is what we would recommend. It is a woman's decision whether she wants to be screened or not. We know that participation rates are about 60%. They could be better, but we know that women in their forties are begging to be allowed a screening, to be allowed into the screening programs and to benefit from early detection. They want to live a healthy life and to be there for their children for many years.
Those are the major recommendations for young women. For women who are 74 years and older, life expectancy has changed and improved dramatically. We would recommend continuing to screen women older than 74 as long as they have a life expectancy of seven to 10 years, which is the majority of women in their seventies.
These recommendations align with international standards, and they are the ones we would recommend for Canadian guidelines.
:
Let me start with the American recommendations.
The U.S. preventive services task force, for their recommendations released earlier this year, started their methodology with the principle that they knew screening mammography was effective at reducing breast cancer mortality. They did not re-evaluate the old randomized controlled trials, recognizing that it had already been proven effective. They only looked at data from 2016 onward, and they included some of the up-to-date evidence showing the benefit of early-stage diagnosis with screening and the increased incidence of breast cancer in women in their forties. That was the basis.
They also looked at the evidence of the disparities among races and ethnicities that showed they were not able to access screening. That was one of the big reasons to change the guidelines to include women in their forties.
You had a question about Sweden, about the more recent observational trial. They were able to compare no screening...and then the trial initiated screening and compared the mortality from breast cancer. Once they initiated screening, they compared the women who did not participate in screening with the women who did participate. What they found was a 60% reduction in breast cancer mortality by comparing women who did not choose to participate in screening with those who did participate. It was a huge benefit in lowering mortality. This accommodated all the recent advances in treatment, and it showed that even for the same treatment of breast cancer, screen detection was associated with a marked improvement in breast cancer mortality.
In an article in Le Devoir from May 30, 2024, the chair of the Canadian working group explains the difference between the recommendations of her group and those of her American counterpart, including the fact that the Canadian working group reviewed 82 studies on patient values and preferences.
To quote Dr. Thériault: “The majority of women in their 40s in these studies, when presented a scenario in line with our numbers (deaths prevented, the number of additional scans, etc.), do not want to be screened”. I find that rather surprising.
Do you think it is normal for value and preference studies to prevail when women's lives are at stake?
:
Thank you very much, Mr. Chairman.
I'd like to thank the committee for this opportunity to discuss this very important issue.
The decision to participate in breast cancer screening or not should be up to individuals, but to inform that decision, they need accurate, unbiased and accessible information regarding the benefits, limitations and potential harms associated with screening. The Canadian Task Force on Preventive Health Care provides advice to primary care physicians and the public, but disturbingly, the information it provides has been distorted to discourage participation in breast cancer screening. This may be responsible in part for the low participation rates mentioned earlier by Ms. Van Dusen.
I am a senior breast cancer research scientist who leads a group of 20 researchers at the Sunnybrook Research Institute in Toronto. I also co-lead the imaging research program at the Ontario Institute for Cancer Research. Much of my work over the past 44 years has focused on breast cancer screening, and my group has helped develop and validate the technique of digital mammography that is now used worldwide. We established breast density as a risk factor for breast cancer. Also, in 2015, I helped write the World Health Organization's IARC handbook on breast cancer screening.
I've been at odds scientifically with the task force since 2011.
Dr. Seely already mentioned the randomized trials conducted in the 1990s that proved earlier detection of breast cancer by mammography screening can help reduce breast cancer deaths. With the modern developments in both screening and breast cancer therapy, more recent large studies, including the one done in Canada that was mentioned earlier, show a 44% reduction in breast cancer deaths in women from the age of 40 onward participating in mammography screening. They have shown definitively that breast cancer screening of younger women saves lives. Certainly, this is a much larger benefit than was seen in earlier randomized trials conducted 40 to 60 years ago. In addition, screening detection of breast cancers in younger women can, in some cases, give them back 20 additional years of life to be with their families, in the workplace and interacting with society.
A decision on screening involves weighing the benefits of averting premature death against the limitations and possible harms. The task force has not done this. Instead, it's made blanket statements about harms, suggesting without evidence that they may approach or outweigh the benefits for younger women.
The task force commissioned a project to model screening outcomes. A table in its guidelines suggested very low benefits from screening younger women. However, we have not had the opportunity to see the details of how it did that work.
I published modelling results in 2015 and 2022, some using the same model as the Canadian task force, and the U.S. preventive services task force commissioned modelling to inform its 2024 guidelines update. Results coming from five NCI-funded models in the U.S. agree well with those from my lab. They show continuously increasing absolute and relative benefits of breast cancer mortality reduction when the starting age for screening is reduced to 40, the stopping age is increased to 79—in other words above 74, as we've been discussing—and screening is performed annually rather than every two years. The worst results are obtained when screening is done at three years, which is a strategy suggested by the Canadian task force with no evidence at all to support it.
Modelling allows us to weigh the benefits versus the possible harms of breast cancer screening, and it has shown that the net improvement in quality-adjusted years of life—I can talk about that later if you want—gained by screening increases when screening starts earlier, ends later and is annual. The benefits consistently dwarf the harms.
As an expert invited to the Ottawa evidence review and synthesis centre, I had the same experience as Dr. Seely of interference by the task force. Against the advice of invited experts, they focused on the older, now obsolete randomized controlled trial data, set arbitrary thresholds to assess the data and used too short an observation time to allow the full impact of the benefits to be measured.
The task force takes a “less is more” position toward screening, and this comes at the cost of thousands of lost lives, accompanied by increased morbidity due to later treatment of disease. Of course, the task force also insists on specifying outcomes only in absolute quantities, which minimizes the perceived level of benefit, especially for lay people. Two lives saved per thousand seems like a small benefit, but that represents a 40% mortality reduction and 470 or more deaths avoided each year in Canada.
It's apparent that the task force has a strong bias against screening or preventive medicine of any kind. Of course, nobody should be coerced into being screened. It's a personal decision, but impediments to access must be removed to provide equity in saving lives. No woman should ever be put in a position of having to debate with her doctor, who has been misinformed by the task force, that she should be able to access screening.
Thank you.
Honourable health committee members, I am grateful to have this opportunity today to talk to you all about breast cancer screening, a topic that is very close to my heart.
I am an academic breast imaging radiologist working at the Princess Margaret Cancer Centre in Toronto and am currently serving as the president of the Canadian Society of Breast Imaging. I am greatly invested in improving patient care and experience through the health care system.
The recently issued Canadian task force recommendations, which excluded screening of eligible women between 40 and 49 years of age, came as a huge disappointment. The recommendations conflict with those of other reputable organizations, leading to confusion among health care providers and patients.
Canada's evolving ethno-racial landscape has been systematically excluded by task force recommendations, which are still predominantly based on older studies involving white women. The data is not fully representative of our population, leading to recommendations that might not be applicable, beneficial or safe for everyone. For example, Black women experience poor breast cancer survival rates, are more likely to be diagnosed with advanced-stage breast cancer and have biologically aggressive tumours, all of which occur at an earlier age than in white women.
Canadian data shows significantly higher proportions of stages 2, 3 and 4 breast cancers occurring in women in Canadian jurisdictions that do not include women in their forties in screening programs as opposed to those that do. Lower stage means less aggressive treatment, fewer side effects and increased disease-free survival. Stage matters. Modelling has shown that by not screening women in the 40 to 49 age group, we would see an additional 470-plus avoidable deaths every year. This is equivalent to allowing a passenger jet full of young Canadian women to crash every year because we refuse to screen them at the right time. This is the chilling reality of the situation.
Mammography is a compression technique. Tissues overlap, and up to 16% of women who come for their first mammogram are likely to be recalled for additional pictures or an ultrasound and sometimes end up with a biopsy with benign diagnosis. This percentage drops over subsequent years. Recalls are not harms. These are like sending your bag through airport screening. Most of the time, it goes through. However, sometimes it gets pulled out, opened, checked and given back, and occasionally a forgotten nail clipper gets thrown out. Most women are grateful that they went through the one extra step for safety.
The task force recommends shared decision-making to allow women to discuss with their primary care providers the age at which they should have a mammogram. In a country that is grappling with a severe shortage of family doctors, this is a distant dream. The power differential between the physicians following the task force guidelines and the patient is a barrier to shared decision-making.
The current tools provided by the task force are biased towards not having a mammogram. Among other recommendations, the task force recommended against supplemental screening for women with dense breasts. We know that dense breast tissue precludes finding breast cancers at an earlier stage, akin to finding a snowball in a snowstorm. This often leads to delayed diagnosis, greater stage and spread of cancer and more extensive and expensive drugs, which may lack funding. These drugs can have a devastating side effect that significantly diminishes quality of life and function.
The task force has stated that there was insufficient evidence to support supplementary screening, and they selectively chose to follow the U.S. task force on their dense breast recommendations. Meanwhile, there are decades of data that demonstrate the benefit of supplementary screening. More recently, Ontario conducted a health technology assessment and drafted a recommendation to publicly fund supplemental screening.
To conclude, we want guidelines based on new and inclusive science that are aligned with other international guidelines and that consider the changing landscape of diversity and ethnicity in Canada. Early detection with normal, personalized therapies is the best we can give women in their cancer journey.
No woman should be denied a mammogram. Self-referral should be allowed, and for those women who prefer not to have a mammogram, they should be free to opt out.
Thank you so much.
:
Thank you very much to all the panellists.
I want to acknowledge the courage of my fellow panellists for speaking up. I don't think we hear enough in general from people with lived experience, and hearing testimony from panel members themselves is extremely powerful.
Dr. Yaffe, I'll go to you, but I'd appreciate brief answers, with full respect. I'd love to spend hours on this, but I only have three minutes. I'm going to share some time with my colleague Dr. Powlowski.
Regarding randomized trials versus observational trials, what I'm taking away is that we can no longer do the randomized trials that were done in the fifties and sixties because it would be unfeasible to do a control and test group, let alone with the evolving technology. In other words, we can't really replicate previous gold-standard trials.
Do you favour the U.S. approach, which is to understand the basic concepts and then move on and use only modern trials from 2016 onward, even though most of them are observational? Could you quickly comment on the merit of that approach?
I respect Dr. Hanley's comments on this. I think the difficulty is that we've heard overwhelming evidence at this committee and it's piling up by the minute. We have one of the world's foremost experts here, Dr. Yaffe, who has worked on this around the world for 44 years, as he said himself. We know very clearly that the evidence suggests women should be offered screening for breast cancer between the ages of 40 and 79. That means women would have access without receiving mixed messages. It would be an incredibly strong message from this committee to tell the task force that what they have concluded is incorrect.
I realize that many of us sitting around this table may not be scientific experts, and I realize we're not on the task force. The difficulty, as we have heard very clearly, is that continuing to allow the task force to operate in a manner that is disrespectful of science, is anti-screening and anti-prevention—those words are not too strong; we've heard them repeatedly here—is reckless, especially when we have heard that 1,000 women will die based on the reckless nature of Canada's preventive health care task force.
Perhaps many would argue that this is not in the purview of this committee or the federal government. However, the important fact we need to remember is that this committee can have an incredibly loud voice out there on behalf of Canadian women, a number of whom will die when they shouldn't because of the inaction, inability or perhaps ignorance of a task force that does not want to consider science, which is dynamic and changing. I was a family doctor for 26 years. Realizing that science changes is an important aspect of providing excellent, quality health care.
The other important thing to note is that for the Canadian Task Force on Preventive Health Care to have a bias, as Dr. Yaffe and other witnesses have suggested, against screening and prevention is a non-starter. It's illogical to think that a task force based on preventive health care would have a bias against screening. That is nonsensical.
To not allow women to make well-informed decisions based on a discussion they could have with their health care provider is incredibly misogynistic, in my opinion. As I said, I'm a male former health care provider. To not allow women to have an opportunity to have a discussion is problematic for me. To not allow that to exist is going to result in the deaths of more women, and that is absolutely intolerable.
I will state for folks that this is an incredibly personal thing for me. My wife had breast cancer diagnosed at age 48. Thankfully, she made it past her five-year mark and has made a fantastic recovery.
That being said, it is not just science. It's personal. We look at the potential years of life lost for young women who are not able to access screening. As our colleague from the NDP mentioned, women from marginalized, racialized and often remote and rural communities do not have access.
Do you know what really struck me with our NDP colleague's testimony? It was that she was a 48-year-old white woman who had to fight for herself. I can only imagine, from my perspective, what it would be like to be from a racialized community and attempting to advocate for yourself when the Canadian Task Force on Preventive Health Care has said that you are not able, at age 40 plus, to access screening for breast cancer. I can't imagine how much of a daunting task that would be. In fact, I would suggest that it becomes an impossibility to advocate for yourself against a system in which the cards and the deck are already stacked against you.
Perhaps, as my colleague Dr. Hanley suggests, this isn't quite the way it should be, but if we do not come forward with an incredibly loud voice, as I suggested to the last panel, the likelihood of the task force succumbing to anybody else.... My goodness, we have someone like Dr. Yaffe suggesting that this needs to be changed, and the likelihood of the task force changing course and agreeing with him is probably slim to none. If we do not make incredible amounts of noise about this on behalf of Canadian women, I think we are doing it a disservice.
The other thing to consider, when you look at the amount of press playing into this, is that it's incredibly important for the media to understand the decision being made and how important it is that the task force is going against new evidence. Our neighbours to the south in the U.S. preventive services task force have agreed that the evidence is there for screenings, perhaps not, as Dr. Yaffe suggested, to age 79, but certainly between ages 40 and 74, with the option for women over 74 to have screenings, as Dr. Kulkarni said, based on their overall level of health. That makes perfect sense.
For us not to make a loud noise about this, when we have had an overwhelming amount of evidence to the contrary, does Canadian women a disservice. I don't want to be a part of doing Canadian women a disservice, and I would urge my colleagues, in spite of their belief that this is not the appropriate table to make this call, to reverse their decision and support my colleague's motion unanimously. I think science is against you, I think public opinion is against you, and I think history will stand against you and say that the decisions you have chosen to make here are inappropriate.
I want to be clear. I like my colleague Dr. Hanley. I respect his decision. That being said, if we do not make a loud noise about this, the difficulty that will persist is that we will continue to send mixed messages to provinces and to Canadian women. Canadian women are going to die because of that and that's not right. It may not be exactly in our purview, but it is certainly within our purview to say that we categorically do not agree with the decisions that have been made, that the decision should immediately be reversed and that breast cancer screening should be extended to women in their forties.
I've asked other panellists here today how best they think we could make a loud noise with respect to that because I believe that is exactly what needs to happen. This needs to be a loud noise. It needs to be definitive. We need to call out a task force that is not respecting science, that refuses to respect science. We know that other task forces in the United States and Europe have chosen not to require randomized controlled trials. We believe this part of the science has been settled. We need to move forward and understand that we have new methods of diagnosis and new methods of treatment for breast cancer and that those new and best methods need to be respectful of Canadian women.
I don't think I can state it any stronger than that. I urge my colleagues to accept unanimously this motion put forward by my colleague from Fort McMurray—Cold Lake on behalf of Canadian women, who are dying senselessly because of the inaction and ineptitude of the Canadian Task Force on Preventive Health Care.
Thank you, Chair.
:
Generally speaking, I'm in favour of this issue and I have been involved with it a long time. Dr. Yaffe and I spoke about it a number of years ago. from the NDP—let me give a shout-out to him—has also been very involved in trying to get this issue addressed.
I have some concerns, as Brendan does, with a parliamentary panel of admittedly non-experts trying to overturn the decision of a body—albeit a seemingly flawed body—like the task force. In my life, I separate the medical—I still practise medicine—from the parliamentary. I think that's important. We're not experts.
I'm just throwing this out there because we haven't had time to fully consider the whole thing. I wonder if there's an appetite for amending the motion. I haven't even cleared this with my own party, but I'm suggesting there might be an appetite for this wording:
That, given that the federally created Canadian Task Force on Preventive Health Care decided not to lower the breast cancer screening age guidelines, and that, Breast Cancer Canada said it was “deeply concerned” by the task force's guidelines, the committee report to the House that the decision by the Canadian Task Force on Preventive Health Care should be immediately reconsidered and that consideration be given to extending breast cancer screening to women in their 40s....
That would perhaps strike a better balance between the two concerns about a parliamentary committee making an attempt to go where perhaps it shouldn't.
Having said that, I agree that we have heard some compelling evidence on this. Certainly, there's enough expertise here that suggests the decision ought to be reconsidered.
This would be a better balance. I don't know if I have to make that a formal motion to amend. Perhaps we need to pause for five minutes for parties to consider it.
:
Thanks very much, Chair.
I thank Dr. Powlowski for that.
With the change, the wording is somewhat watered down, but it's incredibly important that we move on this sooner rather than later. I would hope that my colleagues support the wording change. I know that here on this side, we are supportive of it because we can't move fast enough to make this happen.
The task force committee has been a dilly-dally committee that has known this evidence for some time now. I don't think that in 2024, this is a sudden thing. I think the inaction and the inability to hold the Canadian task force to task have allowed this to continue and have allowed thousands of Canadian women to die every year needlessly.
Time is of the essence, folks. Let's show our colours and support this motion.
:
I call the meeting back to order.
We do not have the amendment available for distribution in both languages, but during the suspension it was agreed that we're ready to recommence.
Where we left off, the debate was on the amendment proposed by Dr. Powlowski. The amendment is to delete all the words after the word “immediately” in the motion and to replace them with the following: “reconsidered and that consideration be given to extending breast cancer screening to women in their 40s, as this will, in the committee's opinion, help save lives.”
Where we left off, Dr. Ellis had the floor, so I recognize Dr. Ellis on the amendment.
:
Chair, I will try to be brief because we are running out of time.
I agree with the substance of the motion. Usually the committee meets, reports back and makes recommendations, but given the urgency, we will make a recommendation to the House today. That does not mean that we will not draft a detailed report to express the full argument around this recommendation.
I have no qualms about not being an expert. If we had to wait to be an expert before making recommendations, not one committee would do it. In that sense, I agree with moving forward. It is rare to see all the witnesses have such a clear view. I asked my questions and I got very clear, unambiguous answers. I agree with the initiative, even though it is a bit unusual. I think the seriousness of the matter calls for the committee to urgently indicate to the House what it wants, as this session ends. I see no problem in the wording that I have before me.
A voice: [Inaudible--Editor]
:
Thank you very much, Chair.
This is a very important topic. It impacts a lot of women in this country. The mark of this committee has been to do thoughtful work and thoughtful analysis.
I'm sure that we all agree on the recommendation we will be making through the work this committee has been doing. What saddens me is that at this moment, with the original motion and the amended motion, which I support, we're basically writing the report. We're really missing the opportunity to capture the pretty much unanimous analysis that we received from some incredible witnesses. The value of capturing and documenting the witnesses' testimony is being missed by using the process we're using. We're not getting a more substantive document in front of the task force in their 60-day review period, which has been extended, as the minister has asked them to do, by basically having a five- or six-line set of recommendations.
That's my concern. I think that's what Mr. Hanley was referring to as well—shortchanging the process. I don't believe in being loud for the sake of it when being loud is not substantiated by a rational thought process. Being loud is far more effective when you can justify why you're being loud, and I think we're missing the opportunity to write a report that analysts would have captured by hearing the testimony.
In any case, I support the amendments that have been put forward so we can help ensure we are moving forward with protecting the lives of women, especially, as we heard, those who are racialized. I come from that background. I've talked about the experience I went through with my mother, who's an educated woman—all of us are—and the kind of anxiety that we faced as we worked through that process.
We should do this in a way that is befitting of this parliamentary committee.
I really appreciate the opportunity to have this discussion today, and I appreciate the motion put forward in relation to fast-tracking this.
Some of the discussion we've had reminds me that for two years I had to fight my own health care provider to get heard and seen. I feel a sense that some of the underlying messages the Liberal Party is trying to send—asking for women's health to be prioritized and asking for women's health to be seen in the House of Commons—are not rational, and I fundamentally object to them.
I have an amendment that I would like to move today, and I hope it can be passed unanimously. I know the has already put forward directives on the draft recommendations from the task force. The health minister has a lot of power to ensure that women are seen, and I hope we can move quickly on this and finally be at a point where women are seen in the health care system and by this government.
One part of my amendment is guidance, as a follow-up to what my Bloc colleague had to say about how many witnesses spoke today about their concerns.
After the wording “‘deeply concerned’ by the task force's guidelines”, I would like to add a comma and then “and so were the majority of witnesses”. Then after the wording “help save lives”, I'd like to add “that the direct the task force to go back to the drawing board and revisit the guidelines based on the latest science; and that the Public Health Agency of Canada table to this committee the parameters given to the task force to update breast cancer screening guidelines.”
I will remind the committee that the did say that with the additional $500,000 given to this task force, his expectation was that the report would be based on current science.
Thank you, Mr. Chair.
:
Thank you very much, Chair.
The challenge I have with the amendment that's been presented is that it asks the to do something the minister does not have the power to do. Again, I'm challenged about approving a motion that is outside the scope of a minister's authority. In particular, it's the part that says, “that the Minister of Health direct the task force to go back to the drawing board and revisit the guidelines based on the latest science”. The minister does not have the authority to do that.
I want to highlight for the committee that the has taken some very important steps to address this issue, and he did so the day the draft guidelines were issued by the task force. Among the steps he's taken, he has highlighted his serious concerns about the task force's findings. He has encouraged all leading experts on breast cancer to carefully review the draft guidelines and to provide their feedback to the task force during their consultation period. He has also called for an extension of the public consultation period from six weeks to a minimum of 60 days so there is ample time for that to happen.
He has asked the chief public health officer to convene a meeting of senior provincial and territorial officials and key experts to review the guidelines in order to share their best practices as well. That is an important step because, as we know, the delivery of health care takes place at the provincial and territorial levels. Furthermore, the has noted that the task force has identified some important research gaps and uncertainties. He has outlined steps to meet those gaps.
Last of all, the has asked that the Public Health Agency of Canada accelerate the launch of the external expert review that will examine the processes of the Canadian Task Force on Preventive Health Care and provide recommendations to improve the process of the task force so we don't run into similar issues in the future. That's a really important step the minister has taken. PHAC funds the task force but doesn't direct the task force, nor does the minister direct the task force. We need to make sure that if there are some systemic challenges to the manner in which this task force operates, which I think we are all seeing in this process, we don't run into them moving forward.
To me, the challenging part is that right now we are debating a motion asking the to do something that he does not have the capacity to do. I think we all want to move forward with this. We want to make sure that, if it is the will of the committee that we move by way of a simple motion, we do so in a responsible way, in a way that is within how the process works.
I suggest that instead of using the word “direct” in the motion, which says, “that the Minister of Health direct the task force”, we use “urge”. That change will allow the to do something he is able to do and that he has already spoken to, as opposed to asking him to do something he does not have the authority to do.
This is a really important issue. This issue is personal to so many Canadians. It's personal to members of this committee, including me. This is not a political or partisan issue. We need to make sure we move in a way that befits this committee so that, as has been said—and I agree with members—Canadian women know we are doing our work in a thoughtful and responsible way by making sure their health is front and centre.
Thank you.
:
I'm speaking to the subamendment of the original motion, but I have to say that I am unhappy that my initial amendments weren't accepted. I think they presented a good compromise.
This motion as it currently stands is basically an attempt by a committee of parliamentarians to overturn the decision of a medical task force, albeit, as I see it, a very flawed medical task force that I agree came to the wrong decision. I don't think it's the place of a bunch of elected parliamentarians to try to overturn the decision of an expert task force, just as it wouldn't be appropriate for us to tell farmers what kinds of seeds to plant in the fields, to tell roofers what kinds of tiles to put on their roof or to tell airplane pilots how they should be flying their planes.
We ought to recognize that there is a degree of expertise here that we do not have. We're coming off as though we're telling them how they should be doing things, ordering them to basically go back to the starting point and review the basic evidence. We are not better than they are at evaluating the evidence, so I don't like the way this is twisted. I don't think it's appropriate that we're trying to dictate to a group of experts what they should and shouldn't be doing. This just ends up looking like a political exercise.
We all disagree with their conclusion, but the right way to do it would be to strongly recommend that they reconsider. Hopefully, they will. We've already put in process other measures to review this. My understanding is that we've also looked at reviewing the way the panel is formed and the way decisions are made by the task force. The has already said he's going to do that.
We would have been a lot better off leaving the original amendment. I think this goes too far. Nowadays everybody is an expert in everything, and everybody is an expert on the evidence. We all have to realize that we as parliamentarians are not experts in everything in life, and I think this has gone too far.
:
I don't have a clear sense of things. It doesn't appear that people are paying attention.
We will conduct a recorded division on the subamendment.
It is a tie, five-five. The chair votes in favour of the subamendment.
(Subamendment agreed to: yeas 6; nays 5 [See Minutes of Proceedings])
The Chair: We're on the amendment as amended. This is Ms. Zarrillo's amendment with the word “urge” instead of “direct”.
Is there any debate on the amendment as amended? If not, are we ready for the question?
An hon. member: Call the question.
The Chair: We'll have a recorded vote, please, on the amendment as amended.
:
Here's the amendment as subamended:
[English]
She moved that the motion be amended by adding the words “and so were the majority of witnesses” after the words “by the task force’s guidelines” and by adding after the words “help save lives” the following: “that the Minister of Health direct the task force to go back to the drawing board and revisit the guidelines based on the latest science; and that the Public Health Agency of Canada table to this committee the parameters given to the task force to update breast cancer screening guidelines”.
Are we clear on what we are voting on? That is the amendment as subamended.
(Amendment as amended agreed to: yeas 10; nays 0)
The Chair: We're now on the main motion as amended. Is there any debate on the motion?
Are we ready for the question? Do you think we can do this by a show of hands?
(Motion as amended agreed to [See Minutes of Proceedings])
The Chair: Dr. Ellis has a motion that I think will be uncontroversial.
Dr. Ellis, go ahead.