:
I call this meeting to order.
Welcome to meeting number 102 of the House of Commons Standing Committee on Health. Happy Valentine's Day, everyone. This is a wonderful way to spend Valentine's evening. I am feeling the love here already.
Today's meeting is taking place in a hybrid format, pursuant to the Standing Orders.
To the folks who are participating virtually, you have interpretation available to you. You have the choice on the bottom of your screen of floor, English or French. Please don't take any screenshots or photos of your screen during the meeting.
In accordance with the routine motion, I am informing the committee that all remote participants, except one, have completed the required connection tests in advance of the meeting. We will test Ms. Long, if necessary, when we get to her.
The subject matter of this meeting is Bill . Pursuant to the order of reference of Tuesday, February 13, 2024, the committee is commencing its study of an act to amend , regarding medical assistance in dying, no. 2.
I'd like to welcome our first panel of witnesses.
Appearing as individuals, we have Dr. Pierre Gagnon, psychiatrist, by video conference, and Dr. K. Sonu Gaind, professor of psychiatry at the faculty of medicine at the University of Toronto, who is here with us in person.
[Translation]
Dr. Georges L'Espérance, president of the Association québécoise pour le droit de mourir dans la dignité, will also be testifying by video conference.
[English]
Dying With Dignity Canada is also with us virtually, represented by CEO Helen Long.
Thank you all for taking the time to appear today. As it was explained, you will each have five minutes for your opening statements.
[Translation]
Dr. Gagnon, we will start with you.
You have five minutes to give your presentation.
:
Good evening, honourable members. I appreciate the opportunity to share some thoughts on this bill.
The first thing I can confirm, as a Quebec psychiatrist, is that certain documents or rumours have been circulating. It has been said that the Quebec psychiatric community is largely in favour of this expansion, which is not true, or that implementing the practice of euthanasia for patients with psychiatric disorders would not generate problems or controversy, which is not true either.
I would like to share a few points with you this evening, which can be boiled down to the following. We should start off by recognizing that suicidal ideation is one of the main and intrinsic symptoms associated with most serious psychiatric disorders. Furthermore, it is clinically impossible, even for the most gifted psychiatrists, to differentiate suicidal ideation from what would be considered a genuine request for euthanasia or medical assistance in dying by interviewing and assessing a patient.
The other thing is that all diseases are different. You can't apply the same criteria in every case. Psychiatric disorders are long-term disorders which seriously affect the will to live. The will to live and die ebbs and flows; this has been shown in a number of studies. Against all odds, patients eventually adapt and want to live. The principle of non-discrimination or equality for persons with psychiatric disorders is to provide treatment tailored to the patient's individual condition, not to provide the same treatment to all persons for all illnesses. In our opinion, the principle of equality means that we should offer treatments tailored to the individual's situation.
With psychiatric disorders, there is always a degree of uncertainty in terms of prognosis, which means that the notion of irremedialness not present. As a result, this criterion for medical assistance in dying is not met.
Similarly, having patients refuse treatment comes with the territory when we are dealing with mental disorders. There is no other field that requires practitioners to obtain court-ordered treatment as frequently as we do in order to treat patients against their will, because they lose all perspective about their condition. It is therefore inconceivable that we should let the patient decide that a doctor should end his or her life, when science proves day after day that these people can be helped, that their condition can be improved and that they can even find a way back to a fulfilling life.
In addition, the relationship between the patient and mental heathcare professionals, as well as the attitude of healthcare professionals, can play a particularly important role. The duty of psychiatrists and other healthcare professionals is always to try to instill hope, which is very valuable therapeutically.
I would also like to point out that when people argue passionately in favour of medical assistance in dying or euthanasia for people primarily suffering from mental disorders, they often give as an example rare or very serious psychiatric disorders that have resisted all treatment. In fact, studies published on cohorts of patients who had undergone euthanasia in countries such as Belgium and the Netherlands show, on the contrary, that much more common and treatable disorders were present in patients who received euthanasia.
In fact, a study published in JAMA Psychiatry showed that in 55% of cases, depressive disorders were the main psychiatric diagnosis. The majority of patients who had undergone euthanasia had a personality disorder or were lonely and socially isolated; 70% of those people were women, whereas suicide is more prevalent in men.
Another study of Belgian patients with mental disorders requesting euthanasia showed that there had been an idiosyncratic and excessive expansion of the concept of intolerable suffering.
This study revealed that psychiatrists had accepted that a significant component of intolerable suffering that made a person eligible for euthanasia could be due to social, economic and even existential factors, such as the loss of a loved one, friend or pet, financial problems or the feeling of being a burden to society.
As a result, it is the most vulnerable people, not those with severe and untreatable mental disorders, who are usually given euthanasia.
I'll leave it there. I look forward to your questions.
Thank you.
My name is Sonu Gaind. I'm a psychiatrist, professor and governor at the University of Toronto, the chief of psychiatry at Sunnybrook, a past president of the Canadian and Ontario psychiatric associations and now the president of the new Society of Canadian Psychiatry. I'm not a conscientious objector and was the physician chair of my previous hospital's MAID team. My roles inform my expertise, but I'm here as an individual. I'm not representing any group.
I want to first express appreciation for the decision to pause the planned expansion of MAID for mental illness. In all honesty, this was the only responsible choice to make because there remain three critical unresolved issues.
First, MAID is for irremediable medical conditions—ones that can be predicted to not improve. Worldwide evidence shows we cannot predict irremediability in cases of mental illness—meaning that the primary safeguard underpinning MAID is already bypassed—with evidence showing such predictions are wrong over half the time. Second, scientific evidence shows we cannot distinguish suicidality caused by mental illness from motivations leading to psychiatric MAID requests. Overlapping characteristics suggest there may be no distinction to make.
Combining these inconvenient truths with the fact that those with mental illness have higher rates of social suffering, like homelessness and poverty, means that MAID assessors would be wrong most of the time when predicting irremediability. They would wrongly believe they are filtering out suicidality and would instead be providing death this March to marginalized, suicidal Canadians struggling with social distress who could have improved.
People talk of false hope. This would be assessors colluding with the patient's mental illness symptoms and providing false despair. They would be wrongly reinforcing that the situation is hopeless to the most marginalized who could have gotten better. That would be the ultimate discrimination.
How did we get here—twice being at the brink of providing MAID for mental illness and twice saying we are not ready? I think it's because those entrusted to provide evidence as experts have pushed ideology instead.
Senator Kutcher's sunset clause in 2021 never asked if we could responsibly provide MAID for mental illness, but set an agenda predetermining that we would. The CAMAP mental illness module claims to train assessors to weed out suicidality from psychiatric MAID requests, yet it does nothing of the sort and there is no evidence that we can actually do that.
The expert panel tasked with providing safeguards refused to recommend any additional legislative safeguards, despite Canada lacking a due care requirement before providing death by MAID. One-sixth of that panel resigned, yet the panel chair doubled down on pushing expansion, testifying that she is not concerned by the two-to-one gender gap of more women than men getting psychiatric MAID where it is allowed. It's remarkable.
Now, the dissenting senators, unhappy with the pause to expand, aim to convince the Senate to disregard Bill 's call to pause, with Senator Kutcher saying they need to “protect against the tyranny of the majority”. Wow.
While citing their historical medical credentials and claiming they are addressing medical and procedural issues of the report, the dissenting senators neglect to provide any evidence to address the key medical issues of the inability to predict irremediability, the inability to filter suicidality and the risks to the marginalized when providing MAID for mental illness.
We're an outlier among peer nations in not even having a national suicide prevention strategy, and these dissenting senators are pushing easier death for mental illness. With any due respect to the dissenting senators, zealotry should not trump reality.
I'm confident that this committee, and I hope the rest of the Senate, will not follow the dissenting senators in their march against evidence.
I must point out the impact that expansionist activism has already had. After Bill 's expansion of MAID for any disability in 2021, MAID deaths shot up by 30% to over 13,000 Canadians in 2022, and 2023 will no doubt be higher. Of these tens of thousands of Canadians, over one-third cite that feeling like they are a burden is a suffering that leads them to MAID. Nearly one-fifth cite loneliness, and for over half it was a loss of dignity.
The debate about providing earlier, easier death has sucked all the oxygen out of the room. What are we now providing death for?
As I wrote in the Toronto Star recently, I hope this focuses us on the real issues of our fellow Canadians' suffering and propels us somewhere better than pushing death to solve life suffering. “If we're serious about addressing these issues,” to quote that piece, “Canada has a chance to be a forerunner in the world by, instead of striving to be number one globally in assisted suicide, establishing the world's first portfolio for a Minister for Living with Dignity.”
Thank you again for your thoughtful review of this issue.
I'm happy to answer any questions.
:
Thank you, Mr. Chair and members of the Standing Committee on Health.
The Association québécoise pour le droit de mourir dans la dignité is grateful for the invitation.
I'm a retired neurosurgeon, an active MAID provider and president of the association.
With respect to Bill , I will focus on a few main points on the new delay in accessing medical assistance in dying for people with mental illness, and then speak about advance requests for cognitive neurodegenerative diseases.
Excluding mental health disorders will only lead to legal challenges, which are cumbersome and unacceptable to affected patients. This is a political decision that goes against the interests of the few patients who could have been assessed, as is their right.
And yet expanding medical assistance in dying to those affected would make it possible to comply with the Supreme Court of Canada's decision of February 6, 2015, as noted by the Senate in 2021. Judges have never unanimously ruled out mental disorders. This exclusion forces patients, who have already been leading broken lives for decades, to go back to the courts request that their constitutional right be upheld by the government.
To give you some context, let me remind you of paragraph 252 of Superior Court of Quebec Justice Baudouin's decision, handed down on September 11, 2019, which reads as follows:
[252] Vulnerability should not be understood or assessed on the basis of a person’s belonging to a defined group, but rather on a case-by-case basis, at least for the purposes of an analysis under section 7 of the Charter.
This bill means an additional three years of suffering for people with mental disorders on top of the three years that have already passed since March 2021.
Further delays continue to stigmatize people with mental disorders, even though the federally mandated pan-Canadian expert panel on MAID and mental illness released its report in May 2022 and very clearly laid out its recommendations.
On the issue of advance requests for cognitive neurodegenerative diseases, the federal , has stated that he has no plans to act on advance requests in the near future. However, in Quebec, this right has been enshrined in law since June 2023, and the Criminal Code must be amended so that patients who want to exercise their right can be assessed by providers who will not have to fear criminal prosecution. Our association urges the federal government to take concrete action on this issue.
While Ottawa dillydallies, patients are suffering. Every year, there are 14 new cases per 1,000 people aged 65 and over, and 70 new Alzheimer's cases per 1,000 people aged 90 and over. More than 15 people are impacted every hour of every day by neurocognitive disorders. By 2030, Canada could have nearly one million people living with neurocognitive disorders.
To delay the expansion of medical assistance in dying for advance requests is to dash the hopes of many citizens. Those who are struggling with the terrible loss of their personality are forced to shorten their lives while they are capable of making a decision so as not to find themselves locked in indignity.
In its February 2023 report, the Special Joint Committee on Medical Assistance in Dying already recommended that you move forward by approving advance requests.
The majority of Canadians are in favour of this measure.
Quebec developed its law on advance requests for medical assistance in dying after an in‑depth consultation process that reflects the specific values and concerns of our province, which are in keeping with those of more than 80% of Canadians.
We ask you to consider any approach that would enable Quebec to follow through with its humanist legislation as of this spring, and thus meet the expectations of thousands of Quebeckers. By allowing advance requests, you have the opportunity to demonstrate your commitment to participatory democracy, Quebec institutions and respect for individual end-of-life rights, in addition to showing humanity and compassion.
It is important to note that eligibility for medical assistance in dying brings serenity and peace of mind, and enables people with disabilities to live fully in the present without the anguish of seeing long road ahead, paved with suffering and loss of dignity from a disease that inevitably leads to death.
Thank you.
:
Thank you very much for having me.
Good evening, members of the committee.
I appreciate this opportunity to testify on a matter of profound concern to the people across the country who are afflicted with severe, treatment-resistant mental disorders. I'm drawing upon a submission we made to the special joint committee in November 2023.
This is an issue that concerns us deeply at Dying with Dignity Canada because it speaks to the rights of persons who have both historically and presently been deprived of section 7 and 15 charter rights to make autonomous and lawful decisions concerning their end-of-life choices simply because their illness is psychiatric in nature and not physical.
The bill before you would extend the denial of access to MAID assessment for those whose sole underlying condition is a mental disorder for a further three years, until March 2027.
Given that Bill , which brought in the right to a MAID assessment for those whose death was not imminently foreseeable, passed in 2021 with a sunset clause excluding that access for those with a mental disorder for two years, which was extended for a further year, means that persons in this category will have been denied for six years the same set of MAID entitlements as those with a physical illness.
It is outrageous to suggest that the development of a regime for MAID MDSUMC needs six years. It is especially egregious given that all of the metrics the government set for readiness in its last delay have been met. We have a nationally accredited curriculum and willing, competent assessment providers. We have practice standards against which regulators of physicians and nurse practitioners can oversee that conduct.
No new metrics are set in Bill . What more is left to do? We need to look to those who are doing the work of providing MAID assessments and provisions; the regulatory bodies charged with the oversight of clinicians' conduct; the 127 physicians and nurse practitioners across this country who have confirmed in writing that the MAID system, MAID assessors and providers and psychiatrists who wish to be involved in MAID MDSUMC and who have testified that they are ready; the regulatory authorities; and, most importantly, patients with severe, treatment-refractory conditions who are ready for MAID MDSUMC.
No new metrics have been established for this delay. Adequate safeguards are in place, including the requirement for a minimum 90-day assessment period, the need to consult with an individual with expertise, a psychiatrist in these cases, and so forth.
We endorse the coming into force of MDSUMC because we have a duty to safeguard the rights of all Canadians. In this case, it's a small group of people tragically afflicted with acute, treatment-resistant mental disorders who, despite many interventions over long periods of time, have experienced unremitting suffering in their lives that cannot be relieved.
At DWDC, we hear from those who, for reasons of fear, embarrassment or stigma, are reluctant to speak publicly about their afflictions but who know only too well what deep, unrelenting suffering means. Even more regrettably, we hear from those who will not speak publicly for fear of being ostracized by their own communities. Often their voices are drowned out by those purporting to speak for them.
You're likely all familiar with the story of John Scully, who has spoken publicly for several years about his mental disorder, but I also hear from Jane and Cathy and others who are not able to speak publicly.
Canada regrettably has a long history of paternalism and arbitrary denial of rights for those with mental disorders, and we have often unfairly conflated mental illness with a lack of capacity. In Starson v. Swayze, the Supreme Court of Canada, discussing the need to redress decades of unfair presumption of incapacity in relation to the mentally ill, wrote, “For this reason it is particularly important that autonomy and self determination be given priority when assessing individuals in this group.”
Every year we hear from thousands of people across Canada who are seeking information or navigating the MAID coordination program across the country. Since Bill passed, the proportion of these individuals who identify as having a mental disorder as either a sole underlying medical condition or a comorbidity continues to rise.
We anticipate that many of these individuals will likely never be found eligible for MAID MDSUMC, but we cannot continue to deny them the right to apply. Doing so only serves to create further distress and angst. They have been left in an untenable position, unable to apply and suffering grievously.
:
Thank you very much, Mr. Chair.
Thank you to the witnesses for being here on this difficult evening.
Certainly, MAID for mental illness has been talked about for an incredibly long time, but to have the calibre of witnesses we have with us in this short time this evening is incredible.
Dr. Gaind, I'm going to begin with you to try to make it more realistic for Canadians out there.
You talked about the difference between suicidality and the desire for MAID. Indeed, suicidality, if I'm not mistaken, is often one of the criteria for diagnosing depression, and you mentioned the inability to distinguish it from the desire for MAID.
For everyday Canadians, could you talk a little bit about that, sir?
:
Thank you for the question. I think it's a very important one because, in my opinion, Canadians have been given false reassurances that the sort of suicidality you're talking about—that's a result of mental illness symptoms—can somehow be separated from other motivations leading to MAID requests for mental illness.
The evidence in the few European countries that allow and provide MAID for mental illness shows that to not be true. In fact, there are overlapping characteristics between those populations. The key issue here is that, when people with suicidality from mental illness attempt suicide, they do not typically succeed nor do they typically try again.
That 2:1 ratio of women to men that I mentioned is a stunning gender gap on which I have not heard a single expansion proponent address in any meaningful way. I would very much appreciate it if any of the other witnesses tonight are willing to address that. However, we think that this stunning gender gap of 2:1 women to men getting psychiatric MAID in the European countries reflects gender-based marginalization. For any psychiatrist, that should be a terrifying statistic because it parallels the 2:1 gender gap of women to men who attempt suicide when mentally ill. Most do not end their lives by suicide, and most do not try again.
What it points out is that, for people with suicidality from mental illness, we try to bring interventions and suicide prevention that can help, but we have no way of knowing whether we should be doing that or saying no and instead sending them through door B where we're going to facilitate their suicide.
The CAMAP guidelines, in my opinion—and I have openly said this—dangerously provide a reassurance that they're doing something that they do not do and that they cannot do. I've looked at those, and this is actually quite literally their stuff on suicide. It's 10 slides. They say that it takes about 10 minutes to go through it, and that includes a four-minute audio clip. There is nothing in there that actually helps separate the suicidality that we want to help with suicide prevention from psychiatric MAID requests except that one about impulsivity. They focus on impulsivity. The reality is that the evidence shows—and this is from the CCA report—that “in Western countries such as Canada, impulsive suicides constitute a small percentage of all suicide deaths, and they often occur when the person has consumed alcohol”.
It goes on, but the point is that many suicides here are not impulsive, so that doesn't help differentiate. The only other differentiating characteristic, when you go through their whole list of questions, is literally, “Is the person planning on doing it themselves, or have they come to you as a MAID assessor?”
Is that how we're deciding what's suicidal and what isn't?
:
Thank you very much, Dr. Gaind.
You talked about the CAMAP guidelines or curriculum. For folks who aren't familiar with them, that's the Canadian Association of MAID Assessors and Providers. You mentioned very clearly that they don't help with determining suicidality versus seeking MAID.
Could you talk a little bit about those guidelines again? I've gone through them myself, but we talk about assessing irremediability, which, of course, I believe is an impossibility. I wonder if you've looked at that curriculum with respect to how it might teach physicians or nurses to do that.
I know I don't have much time, but I just want to plant a thought in your head. As I see it, the CAMAP curriculum is for primary care physicians or nurse practitioners. The likelihood of having psychiatrists performing these assessments, given the inability at the current time to access a psychiatrist, is almost zero.
I want to echo Dr. Ellis in thanking the witnesses for gathering, not just on Valentine's Day but in the evening and on short notice, and being able to provide us with this really useful testimony.
Obviously, there have been years of deliberation on this, including the recent committee meetings. I'm trying to put my questions into a framework of “what now?” What do we do after Bill in terms of next steps? How do we best prepare?
I'd like to start with Dr. L'Espérance. I want to understand more about what we can learn from the experience of Quebec and how you see the direction in Quebec, particularly for MAID eligibility for mental illness. I understand from Bill 11 that this is a permanent exclusion. Is there anything we can learn as a country from the deliberations of Quebec?
Where do you see Quebec's health system in terms of readiness for mental illness as a sole underlying medical condition? How do you reconcile that with the direction of the legislation in Quebec?
:
Actually, we have no experience in Quebec in terms of approving MAID in cases where a mental disorder is the sole underlying condition, because we are subject to the Criminal Code, like the rest of Canada.
The Quebec committee that studied the expansion of medical assistance in dying set aside the issue of patients whose sole condition is a mental disorder because there was not enough evidence of a society-wide consensus on the issue. However, the committee's report was prepared before the report of the expert panel commissioned by the federal government, which was tabled in May 2022. So that's a factor.
What would Quebec's position be now that the expert panel report has been tabled? I couldn't tell you. I'm not a psychiatrist, which is fortunate for patients. However, I am relying on what is presented by the experts, particularly in the report by pan-Canadian experts mandated by the federal government.
We cannot completely exclude the problem of mental health, because we would be denying certain rights, but we need very strict guidelines with a long-term view. In our discussions, we always talk about an illness that had afflicted patients for 20, 30 or 40 years and whose quality of life has deteriorated grievously as a result of a mental health disorder.
First of all, I'm going to make a comment about our two psychiatrists.
It seems to me, from what they have told us this evening, that they are of the same opinion. They are testifying as individuals to tell us that they are at odds with the Canadian Psychiatric Association, the Canadian Bar Association, the Association des médecins psychiatres du Québec, the Federation of Medical Regulatory Authorities of Canada, the Canadian Association of MAiD Assessors and Providers—we have a lot of comments on that—and the Collège des médecins du Québec.
According to Dr. Gaind, the members of these organizations are ideologically motivated activists. We used to see that in the former Soviet Union, where science was pitted against ideology. When someone disagreed with the other person's opinion, they accused the other person of basing their position on ideology. It's called “scientism.” That said, this is not the place for an epistemological debate.
The fact remains that I am interested in Bill , but I haven't heard anything on the bill, which contains a very important provision. Do you believe that we should postpone the provision indefinitely? Do you agree with the three-year period? I would just like to know what you think.
Dr. Gagnon, you have the floor.
Dr. L'Espérance, the committee tabled its first report in February 2023. We had to look at all the possible scenarios for expanding the eligibility criteria for medical assistance in dying, and the committee made a strong majority recommendation in favour of advance requests. It may have been a good idea for the government to wait to see what could be done for people with mental disorders, but, at the last minute, it decided not to include this recommendation in Bill , whereas it included, word for word, the recommendation of the Expert Panel on Medical Assistance in Dying and Mental Illness.
Did that surprise you? How do you explain that?
Could you shed some light on how advance requests work in Quebec, so that people understand what it is all about?
:
You have to understand that mental health is one issue and advance requests quite another. It's true there's no medical or societal consensus on mental health. We're told the psychiatrists are split 50-50.
That being said, there's a very broad consensus across Canada on advance requests associated with neurodegenerative diseases, the best known of which is Alzheimer's. Some 82% of Canadians are in favour of advance requests. As I mentioned, cognitive neurodegenerative diseases will put an enormous weight on the shoulders of patients, first, and their families, second. This is increasingly the case, and it's increasingly prevalent as people advance in age.
Advance requests enable individuals with an established diagnosis to say, while they're still capable of making a decision, that they want to receive medical assistance in dying once they've lost that capacity, in such and such a condition. It is the essence of the law in Quebec both to enable those individuals to retain their dignity and to help them live days, months or even a year or two longer surrounded by their families and loved ones, even if they've lost some of their capacity. That's the principle of advance requests: to honour people's dignity to the end of their lives.
:
Thank you very much, Mr. Chair.
Thank you to all of our witnesses for helping to guide us through this part of the study of Bill .
I've been a member of the Special Joint Committee on Medical Assistance in Dying from the beginning, and I'm very familiar with the subject matter that's before us.
Ms. Long, I'd like to start with you, if I could.
Thank you for your opening statement and for representing Dying with Dignity. Of course, ever since our special joint committee tabled the report in the House of Commons and in the Senate with our single recommendation, we are also in receipt of a letter that was signed by the health ministers from seven out of 10 provinces and all three territories.
If you look at that letter, you can quote from the middle of it, where it says, “The current March 17, 2024, deadline does not provide sufficient time to fully and appropriately prepare all provinces and territories across Canada”. Further down, they ask the and the to “indefinitely pause the implementation of the expanded MAID eligibility criteria to enable further collaboration between provinces, territories and the federal government”.
Ms. Long, when I look at the signatories, I see that they include ministers of health and ministers responsible for mental health and addictions. You can see that they are widely across the political spectrum. They include the NDP government in British Columbia and several Conservative governments in other provinces.
I want to know from you how Dying with Dignity responds to this letter, given that these are all cabinet ministers, they have executive-level functions within their respective governments and they are responsible for the systems of health that are actually going to be overseeing this process. If they are publicly asserting that their systems are not ready, how do you respond to that with your opening statement where you said that we are ready?
:
Thank you for the question.
I think that, when you listen to the testimony that was heard in front of the committee, there were certainly indications from the regulatory authorities, for example, that they are ready. There was an indication from individual clinicians, psychiatrists and nurse practitioners that they are ready. While every province may not feel fully ready, certainly some of the conversations we've had and the testimony that we heard, as did all the committee members, would indicate that there are people who are ready to move ahead.
In terms of system readiness from the provincial perspective, it's not clear what needs to be done, so I think the question I would have for the individuals writing that letter is this: What exactly are we looking for before the provinces determine they're ready?
:
I'm happy to, and that actually links a bit back to Monsieur Thériault's question, which is trying to set a predetermined timeline by which we will have evidence, and we don't know if we will.
The holes are this. If we are saying to people that we are predicting their mental illness won't improve, we need to have evidence that we can do that honestly, and we don't have that. Whatever there is on track two or track one doesn't address that.
As well, the separation of suicidality from psychiatric euthanasia requests also is something that the evidence does not show, so you can have people saying that they think they can do something and it doesn't mean that they can. We have physicians saying that they think you should take Ivermectin for COVID. It doesn't mean that we should set a regulatory framework to do that; it's ridiculous.
What I am speaking to is the evidence, not what any particular individual is saying.
I will also say, by the way, that in terms of my own former professional association, the Canadian Psychiatric Association, of which I am a past president, I find that the input they have provided to this file has actually been shameful.
You were asking about track two. In the consultations leading up to Bill , consultations on mental illness and death, they never once mentioned suicide prevention. They never once mentioned evidence related to suicide risks of mental illness or marginalized populations. That would be like a respirologist association never mentioning smoking as a risk factor for lung health.
You go think what that means. I don't know what it means, so—
Dr. Gaind, proponents of this expansion, including the government-appointed chair of the expert panel, Dr. Gupta, have claimed that only a small number of individuals would be eligible for MAID for mental illness. In fact, she said that, in her many years of practising as a psychiatrist, maybe only two or three, or a handful, would be eligible.
They cite the model practice standard to demonstrate, supposedly, that this would be the case. I would be interested in your thoughts.
:
I actually find those kinds of statements, coming from some people who were in positions to actually suggest potential legislative safeguards, quite remarkable, because while Dr. Gupta said that, she also chaired the same expert panel that literally said they were not recommending a single legislated safeguard for MAID for mental illness.
In terms of predicting irremediability of mental illness, the same expert panel—or the 10 remaining members, because one-sixth of them resigned, including the health care representatives—said they would not or could not provide guidance on the lengths, numbers or types of treatments that somebody should have access to before getting MAID for mental illness. To me, this actually speaks a bit to some of the points Ms. Long and others have raised. They paint a picture of how these are people who have been suffering for decades and decades and who have had multiple treatments. There's nothing in our legislation that requires that. It's an artificial picture.
If you want a sense of actual evidence-based numbers with respect to what this might be like, Scott Kim, a researcher at NIH, has done an evidence-based analysis and he estimates there are several thousand people a year.
The things in the model practice standard and other things that are not legislated and are not actual safeguards are basically suggestions. Suggestions are not safeguards. Reassurances without evidence are dangerous, in my opinion. This is a serious business. We are providing death to people who are not otherwise dying, and there need to be serious safeguards.
If Kenneth Law were a doctor instead of a chef, how comfortable would you be with his being your mother's MAID assessor if there were just non-binding suggestions and empty reassurances rather than legislated safeguards?
:
As far as I know, relying once again on the data provided by the experts, I see that some data indicates that psychiatrists and physician providers of medical assistance in dying can assess the patients.
It's also very important to understand that some of the patients who request medical assistance in dying, or who are currently eligible for it as a result of physical diseases, also suffer from mental health issues. Their capacity to make decisions for themselves is therefore accurately assessed.
What's more, in my clinical practice, particularly in surgery, we also regularly work with patients who have mental health problems. You also have to assess those patients' suicidality and capacity to make decisions.
For example, if a 40-year-old patient suffering from abdominal pain tells his physician that he doesn't want surgery and would prefer to die, that patient will obviously undergo a psychiatric assessment, be treated and then be treated for the physical issue. The same is true for all physical diseases.
So physicians, generally speaking, are in the habit of assessing patients' capacity in their everyday clinical practice, where necessary, of course.
I'm absolutely convinced that very few patients with mental health issues would request medical assistance in dying for the simple reason that significant safeguards have been established in response to the expert panel's recommendations.
Medical assistance in dying may not be administered to individuals who simply appear one morning and request it. To be eligible, they must have been suffering for many decades, and attempts must have been made to administer all treatments.
Note, however, that no one is required to try all the treatments. The patient is free to reject them, as provided under the Canadian Charter of Rights and Freedoms.
Of course, if we're talking about a patient suffering solely from mental health issues who requests medical assistance in dying, they will have to have undergone a certain number of treatments. However, it's false to say that all possible treatments must be attempted because that would violate the Charter.
:
Thank you very much, Mr. Chair.
Dr. Gaind, every problem we've had with this particular issue of mental disorder as the sole underlying medical condition you can trace all the way back to that eleventh-hour Senate amendment to Bill . I was here during the 43rd Parliament. I was here in the 42nd Parliament for the first debate on MAID. I remember when the charter statement was first issued for Bill C-7, which I think reasonably explained the government's original position for excluding mental disorders as qualifying for MAID. They recognized the inherent risks and complexities that would be present for individuals. They noted that the evidence suggests that screening for decision-making capacity is particularly difficult. They noted that mental illness is generally less predictable than physical illness. However, inexplicably they accepted a very consequential Senate amendment.
It seems that we've just been constantly kicking the can down the road. The first delay was for two years. Bill delayed it by a further year. Here we now are, with Bill , looking at another three years.
I'm just wondering, first of all, what your reaction was at the time when the government did that 180° turn in their decision. Also, I think you sort of answered this, but I'd like you to expand on it a bit more. Can we actually ever be ready for this, or are we just setting ourselves up for failure in 2027?
:
On your last question, I'm not trying to be flippant, but I think the only honest answer is that we don't know if we would be ready in three years or not. This is why it's problematic to say that we will be ready in three years when we don't know.
The reason we don't know goes back to the first points you were making, which were reflecting the deeply flawed process that was behind this in the first place. We never asked those questions. We never actually asked those questions. From day one, with Senator Kutcher's sunset clause agenda, it was a predetermined course that we will offer this, without asking those questions that need to be answered first. To me, that's really putting the cart before the horse.
I'll also point out that on these key issues of irremediability and suicidality, I find it quite striking that it's not only the people who are expressing caution who cite those. Even the ones who have been at the forefront of saying that we should be doing this have acknowledged that.
Dr. Gupta has chaired a number of these expert panels. She also co-authored an AMPQ report in 2019 or so. I can't remember which year. In there, they literally acknowledge, the provincial association, that regarding irremediability it is possible that a person who has recourse to MAID, regardless of his condition, could have regained the desire to live at some point in the future. They acknowledge that, but then say that it should be an ethical question each and every time.
When you're getting a medical expert opinion, ethics are fine, but I think people are thinking they're getting a medical expert opinion and not the person's personal ethical judgment. On suicidality, they've acknowledged that as well on the expert panel.
I work in a hospital and talk to the doctors in other disciplines who are used to medical assistance in dying. When I discuss this new development with them, they say it makes no sense and wonder how it's possible. They emphasize that the purpose of our profession is precisely to treat suicidal patients.
I talk to some of my very experienced psychiatrist colleagues who have seen some very serious cases, and they tell me that, with their patient cohort, they would never be able to distinguish a suicide from an authentic request.
A discussion took place within the Association des médecins psychiatres du Québec, in which one astute and highly experienced psychiatrist said he would never do it. He would ask a colleague to do it. He wasn't opposed to it in theory, but he said he didn't understand how he could do it in his career, despite the fact that he had extensive experience with very difficult and complex cases.
We're unfortunately unable to make that distinction at this time.
Ms. Long talked about people with unremitting suffering. You've talked about the difficulty of determining irremediability, whether people really aren't going to get better. Also, as a practising physician, I saw someone I knew over Christmas when I was working at a walk-in clinic. As soon as he saw me, he said, “Hey, Dr. Powlowski. How are you?” I'd seen him repeatedly for either suicide attempts or suicidality over the years. In an emergency room, he would have been the exact kind of person Ms. Long would perhaps say had unremitting suffering. I was very gratified to see him, and he seemed quite happy. I asked him what had changed, and he told me a whole bunch of things.
Have you had the same experience with people who had been written off as never getting better, who actually did get better?
Maybe afterwards I can ask the same thing of Dr. Gagnon.
:
Yes, I have. That's precisely part of the challenge here. This is why it's not an issue, as Ms. Long presents it, of autonomy. It's not an issue of capacity of the patient. It's the capacity of the assessor to honestly judge when the person won't get better—and they can't make that assessment, which is the problem.
Just yesterday, I was on a panel at the U of T faculty of law with the former head of the Ontario Bar Association, Mr. Orlando Da Silva. If you get a chance to see that streamed, I highly recommend watching his portion of it. He very poignantly describes his own experience of repeated, severe depression when he was suicidal, and also, by the way, functioning, doing cases, trial law, and completely competent. He knows he would have been able to get it, and he would have wanted it. He is very concerned about what this would do to people who would be in situations like he was.
:
Yes, I saw some of these patients, and my colleagues always talk about these patients who improve. Often, they don't understand why. Often, it's a relationship, a life event or a change in therapeutics.
I have an example. As a psychiatrist, I also follow cancer patients when they're depressed. I had a patient like that who had a severe borderline personality disorder and depression. She had been suicidal for decades and was always in the emergency room, like some patients you saw, maybe. Then suddenly she had metastatic cancer and she stopped being suicidal. She told me, “Before I had cancer, I always wanted to die when I couldn't, and now I could die and I want to live.” She had five years of very productive and fertile happiness. You see that all the time with our colleagues. It's very tough to predict.
What I also wanted to add is that we always forget that now there are new treatments. I'm the chairman of the department of psychiatry at Laval University, and my job is to recruit young physicians with new techniques and new procedures. They train all over the world and come back to our centre in Quebec City. They go into different kinds of psychotherapy, such as neuromodulation and transcranial magnetic stimulation. There are new treatments that are very promising, such as ketamine treatment or psilocybin. You have all these new treatments that could be game-changers. We sometimes forget to talk about these new treatments that could really give hope and change the course of the illness.
Thank you.
:
That's precisely what I and most of my colleagues fear. You've hit the nail on the head. That is exactly what will happen, and the problem is that we will not know which of those people would have recovered. They will all go in the bucket of MAID assessors saying that this would have never gotten better. We will assume that they never would have recovered, and more than half of them would have.
I've actually heard from patients who have said that they are fearful for the future and are potentially not wanting to seek help when they get depressed again. Why? Because they're concerned that somebody is going to say to them, “Do you want MAID instead?”
We talk about the model practice standard. Remarkably, in that, it says that, for any adult who could be eligible—unless you already know, somehow, that MAID would not be in their value system or their goals of care—you need to advise them MAID could be an option. That actually means any adult with a disability, because MAID could be an option for any adult with a disability.
I don't know of any other country that has basically said something so permissive. Most say that the physician cannot be the one to bring it up, because that can be seen as suggesting it from the white lab coat.
:
We have about 90 seconds left, Dr. Gaind.
In the stories I've heard from Canadians suffering from mental illness, hope seems really far away in a world of darkness, and there's a lot of darkness in this world today. However, when given proper support networks, treatment and medication, etc., these people cherish the chance at a better life.
Do you think the government should be offering a second chance at a better life rather than a path with no return?
:
Thanks, Chair. I appreciate the opportunity.
Dr. Gaind, I was on the special committee. You and I have met before.
In fact, I was on the special committee's most recent incarnation and the one before that. I was also on the justice committee that dealt with Bill , so I have some knowledge of this. However, I don't profess to be anywhere close to any of you in terms of my ability to comprehend some of the challenges we're dealing with, which is where I'm going to go with my question.
We're here dealing with a piece of legislation on a fairly specific point. We're not here discussing the morality of medical assistance in dying. We're not here debating whether it is constitutional or is not. We're not here dealing with advance requests. We're dealing with whether or not this bill should proceed in its current form and why.
I'm not a doctor. There isn't a consensus on this. I've been on the committees, as I said. Look, we have three doctors on this committee, and I'm reasonably comfortable in saying that I don't think we have a consensus at this table, and that's excluding you, Dr. Gaind.
Here's my question. We have four witnesses here, two of whom, if I'm correct, have said that we should not delay. Two have said we should.
I want to start with you, Ms. Long. Here's my dilemma. We're tasked as legislators with deciding whether the system is ready or not. I've had the opportunity to hear from numerous witnesses, review numerous briefs and review all kinds of articles and information on all of this, and there's no consensus.
You're here saying there should be no delay because we need to safeguard people's rights—and I'll get to that in a minute too—but put yourself in my shoes. I've heard from all of these people and read all of this information and there's no consensus. It's not even close to being a consensus. I'm not a judge and I'm not on a jury. I don't get to decide who's right and who's wrong. What I have to do is decide whether the system is ready.
If you're in my shoes and you're faced with that situation—you have a whole bunch of people saying the system is not ready and they're highly trained professionals—am I not doing the responsible thing by saying we should delay it and discuss it further?
:
Thank you for the question.
I think if we go back and look at what the government outlined as what was required to demonstrate readiness, that has been done, and the testimony did say that. I think people need the ability to make their own choices once they've engaged in reflection and once they've had treatment. We talk about people not having to have treatment, people not needing to see a psychiatrist. The MAID assessors and providers that I know are people who are careful and thoughtful in their work. No one is looking to help people die by MAID instead of helping them to live.
I think there have been a lot of stories in the media that would lead people to believe that there have been cases of wrongdoing. There are no cases of wrongdoing. There have been no criminal charges laid in the past. These are careful assessments done on a case-by-case basis. Not being a psychiatrist, I can't speak to many of the points that have been raised. I think Dr. Gupta and others—
:
We are. That's precisely my point. There's a large number of them who disagree with what you're saying. They say that the system is not ready, so I'm doing precisely that.
My last point, while I have a few seconds, is this. In terms of safeguarding people's rights, does that not include people who might make a decision at a stage when it could be premature and who might potentially recover?
There are rights on both sides of the equation. It's not a one-sided issue. That's one of the challenges I have with this discussion. People pick one side or the other, but it's not black and white. When it comes to people protecting the rights of individuals, you have to look at both sides of the discussion. Is that not fair?
:
Dr. Gagnon, the Canadian Association of MAiD Assessors and Providers, or CAMAP, and the expert panel on MAiD and mental illness say that individuals in suicidal crisis aren't eligible for medical assistance in dying.
Earlier you discussed suicide attempts and suicide prevention. These experts say that suicidality is a reversible state. So the question doesn't arise. There's no way a person in a suicidal state can be eligible for medical assistance and die.
Why are you confusing the issue? If an assessor sees a connection between a request and structural vulnerabilities, there's no way he or she should agree to a request for medical assistance in dying.
You say there are no safeguards, but there are. These people have established their own safeguards. They conduct assessments and tell their peers there's no way a patient can be eligible in that kind of situation. I imagine you agree with that.
Dr. Gaind, I want to step back from this and approach it from a Charter of Rights and Freedoms angle.
I know that you and I are not constitutional experts, but you know what's invoked when we we look at section 7, which is the security of the person, the right to life and so on. Basically the layperson's interpretation is that everyone has the right to make decisions about what happens to their own body. Of course, section 15 provides that everyone has equality under the law. In section 1, some rights of the charter can be justifiably infringed upon by a free and democratic society.
My struggle through every aspect of my work on the special joint committee has always been trying to find a balance between an individual's rights to make decisions about their own body and the need for society to sometimes step in and protect our most vulnerable. That's been a real struggle for me—I won't lie.
I'm just wondering from your perspective and from other physicians' perspectives, when it comes to this particular issue of mental disorders as a sole underlying medical condition, how do you approach and find that balance?
:
As you point out, I'm not a lawyer, so this is just my understanding of it and obviously not my expertise and stepping outside of that.
I do recall that, even in the original Carter decision and the section 7 argument, I thought part of that was the issue of foreshortened life, meaning that, if somebody is in a state where they can foresee that they will get to a point where they cannot act to end their own life and they choose to end their life earlier than that period of intolerable suffering, that's foreshortening their life. It was one of the rationales, in my understanding, that MAID needed to be an option.
That entire argument doesn't apply to mental illness because, while mental illness causes tremendous suffering and sometimes can affect capacity—although most of the time people remain fully legally competent—it very rarely takes away the person's agency to act to end their life or do other things. Right there you see some differences between some of the arguments that were made on that case in Carter. People sort of forget about that.
It is a significant issue because, as I alluded earlier, of the difference between doing something for someone or someone doing it themselves. When we talk about the right to my own choice, the way I think about that simplistically is that it's the right for me to do things for myself. When I expect something to be provided to me, that incorporates other things. If we're expecting the state to provide an easier, facilitated death, I think it's incumbent on us to think about how that plays out for everyone—not just on one person but everyone, including vulnerable populations.
We know that our laws can affect different people differently. As the poet Anatole France said, the law, in its majestic equality, forbids the rich as well as the poor to beg in the streets, to steal bread and to sleep under bridges.
Thank you to our guests for being here.
Dr. Gagnon and Dr. Gaind, you said some things that are resonating with me. Last night, in my intervention on Bill , I shared for the first time something that I had not shared previously. While I have spent every minute of being elected for the last eight and a half years fighting for mental health supports for our frontline personnel, whether it's those who are struggling with PTSD or OSI, and I've been fighting tooth and nail for the country to adopt a national, three-digit suicide hotline, there was a time in my life when I struggled. The thoughts of death consumed my whole being. I attempted suicide twice. I'm living proof today that life is worth fighting for.
When I speak about fighting for those who don't have a voice and about my concerns about what Ms. Long is saying, I don't believe there are enough safeguards we can put in place to ensure that somebody who, like I was, is in a dark spot and finds a permanent solution for a temporary problem....
I appreciate your comments and all of your testimonies. I can respect all of the testimonies. My worry is that there will be many people, if we expand this to those who are struggling with mental illness, who say that they want to die, but they don't want to be dead. It's such a final act.
I also have a loved one who has recently chosen MAID. While we hear about the safeguards that are in place—a cooling off period and what have you—I also know that if that loved one of ours wanted it right away, they could get that.
My worry is for those who are struggling with mental illness and want to die because of whatever situation they're in. If only we can provide hope for the helpless and care instead of despair, I think we can really make a difference.
I thank you for your testimony.
:
Thank you very much, Chair.
This is obviously a very sensitive, emotional and, for many, personal issue that we're discussing here today.
I don't profess to have the depth of knowledge on this particular issue, especially as it relates to MAID that applies to people with mental disorders, that many members of this committee do, given the extensive amount of work that has been done. My engagement on issues on MAID goes back to 2016 and 2017 when the Carter decision was being implemented. I served as the attorney general for the Province of Ontario and worked along with the minister of health at that time to apply the federal law in the provincial space.
What I do know from that work is that there needed to be a fair amount of work that had to be done in terms of the health care system being ready to apply MAID in a manner that, from a legal perspective, protected people's rights, but from a health care perspective, ensured there was appropriate training, curriculum and safeguards in place so there was no abuse of any kind.
That's where I'm coming from. For me, Bill is about whether or not the system is ready to apply the laws being passed by Parliament. It is the view of the government, based on what we have heard from experts, based on what we have heard from the requests we have received from the provinces and territories, that the system is not ready and we need more time, hence, the extension for three years.
I will go to Dr. L'Espérance first and then to Ms. Long.
In your view, is the system ready to administer MAID for people with mental disorders as early as March 17 of this year, or is it appropriate and prudent to have an extension of time before we are sure that the health care system across the country, and not just in certain parts of the provinces but across the country, is sufficiently ready to administer MAID to people with mental disorders?
I will start with Dr. L'Espérance first.
:
Thank you for your question.
I'll answer it simply by saying that it isn't the system that administers medical assistance in dying; it's the clinicians.
All the clinicians who belong to the Canadian Association of MAiD Assessors and Providers, or CAMAP, have worked very hard in the past two years to establish safeguards. To do that, in the past year, they've followed the recommendations of the experts' report, among other things. We agree this isn't a simple issue. However, three years have now elapsed, and I don't think we'll be any further ahead if we delay another three years.
The issue is based on a clinical decision element, with all the necessary safeguards, as recommended in the expert's report. However, I repeat that this isn't a simple issue. In my view, delaying for another three years will result in absolutely no change in the situation. We will only be indefinitely postponing the decision, as we mentioned earlier.
That concludes three complete rounds of questions. We're at five minutes before nine. We're expecting the ministers at nine, so we're going to suspend now as we switch over to the other panel.
Please allow me, on behalf of the committee, to say to all of you that this has been an absolutely fascinating panel. We very much appreciate your expertise and how quickly you responded to the invitation from the committee. We gave you as much time as we had in terms of lead time, which is a lot less than we usually have, but you responded. You've been very patient and professional throughout the evening with your answers, and we are absolutely grateful to you for that.
With that, we're going to suspend and await the arrival of the two ministers.
Thank you very much to our witnesses. You're welcome to stay, but you're free to leave.
We're suspended.
:
I call the meeting back to order.
Before we begin, I would like to welcome the Honourable Mark Holland, Minister of Health, and the Honourable Arif Virani, Minister of Justice.
We also welcome the officials accompanying them tonight. From the Department of Health, we have Jocelyne Voisin, assistant deputy minister, strategic policy branch; and Katarina Pintar, director, health care programs and policy directorate. From the Department of Justice, we have Robert Brookfield, director general and senior general counsel, criminal law policy section; and Jeanette Ettel, senior counsel, human rights law section.
Before I invite you to bring your opening remarks, I will just say that I know this is your first time before this committee, Minister Virani. We've adopted in this committee a convention that, I would say, has worked fairly well for us, so I just want to make you aware of it. It's quite simply that you will be afforded as much time to answer the question as the person who poses it takes to ask it. It is the prerogative of the questioner to allow you to go on for longer, but if they ask a four-second question and you speak for 10 seconds, they'll probably interrupt you and I won't stop them.
With that, we're going to begin with opening statements, beginning with Minister Holland. I know it has been a long night for both of you after a couple of hours in the Senate. We appreciate your being here.
You have the floor, Minister Holland. Please go ahead.
:
Thank you very much, Mr. Chairman. It's good to be back in front of the health committee.
We did just have a very productive session, the last couple of hours, with the Senate, getting an opportunity to talk about what is a very delicate and sensitive issue, one that requires a lot of calm, patient deliberation.
I appreciate the members of this committee for their input and work. I certainly appreciate the work of the joint committee as we attempt to navigate this very difficult issue.
I think I'll start by making a very clear and important distinction between mental health and mental illness. Mental health, not only in Canada but across the world, is in a state of crisis. Coming out of the pandemic and dealing with the rise of very devastating wars, global economic uncertainty and the existential crisis of climate change, these are difficult times to be a human being.
However, the challenges we're facing in mental health are completely separate and apart from the issues that we're talking about in Bill with respect to mental illness. That distinction is an important one, because a conflation is both dangerous and, I would represent, irresponsible.
When we talk about mental health, there are the historic investments we're making in mental health across this country, co-operating with governments of every stripe. I had an opportunity just yesterday to be in the Northwest Territories and announced our bilateral agreement on both aging with dignity and working together. Just the day before that, I was in British Columbia announcing our aging with dignity agreement there. Of course, I've already announced the working together agreements with B.C., Alberta, Nova Scotia, P.E.I. and many more to come, with specific and detailed plans of how we're going to take on the challenges we're facing in mental health.
When we're talking about mental illness, we have to recognize that there are some people who are trapped in an irremediable situation, where their state of illness is not able to be remedied through medical intervention, so we have to ask the question, as a society and indeed as Parliament, of at what point we allow a person, of their own recognizance, if they have an irremediable condition, to be able to make the choice to access MAID.
If somebody has suffered for 10 years, 20 years, 30 years or 40 years, where they've tried absolutely everything, where they've gone to medical practitioner after clinician after expert and have never been given the opportunity to escape that mental health illness—not a momentary mental health crisis—what do we do as a society? That's what we've been trying to navigate.
The decision we have in front of us now is to ask for more time to prepare the system. I've had opportunities to talk with health ministers. We had a very constructive conversation in Charlottetown when I was together with all the health ministers, Mr. Chairman, in your home province, discussing how we navigate that and how we get the system ready.
Frankly, we need more time.
We need more time for indigenous engagement. We need more time to work with the provinces and territories to make sure they have appropriate safeguards. Talking with CAMH, we want to make sure that, if there's a possibility that clinical guidelines are required to create uniformity across the country, we have an opportunity to explore that. We need more time to work with the disability community and with the community of folks with lived experience, so a three-year pause is appropriate so that we can deal with mental illness, which is separate and apart.
I would welcome the conversation on mental health, but hopefully tonight people will not be conflating those two because they are two separate conversations.
We do need time and I'm appreciative of the opportunity to be before committee tonight to have that conversation and to take the questions of the committee.
Thank you very much.
:
Thank you very much, Mr. Chair. I'm pleased to be here to speak to Bill , which proposes to delay for three years, until March 17, 2027, the expansion of the eligibility of MAID to persons whose sole underlying medical condition is mental illness. As members will be aware, this bill also requires that a joint parliamentary study be undertaken on the topic, by a mixed committee of Senators and MPs, approximately one year before the new date of expansion.
I will start by expressing my sympathy for anyone experiencing intolerable suffering. I acknowledge that mental illness can cause the same level of suffering as physical illnesses, and that having a mental disorder does not mean that an individual does not have decision-making capacity. Everyone deserves dignity and respect.
As this health committee is aware, the Supreme Court of Canada's decision in the Carter case led to the legalization of medical assistance in dying in Canada. In that decision, the Supreme Court declared the Criminal Code's absolute prohibition at the time on physician-assisted death to be unconstitutional, noting that it should be available to competent adults who clearly consent to the termination of life and who have a grievous and irremediable medical condition. That led to Canada's first MAID law in 2016. Many members were here with me in 2016 when we enacted that law, which restricted eligibility for MAID to persons whose natural death was “reasonably foreseeable”.
[Translation]
A few years later, in the Truchon decision, a trial court in Quebec ruled that the reasonably foreseeable natural death requirement was unconstitutional.
The federal government didn't appeal the decision. Instead it made the general political decision to introduce Bill to expand eligibility for medical assistance in dying to persons whose death wasn't reasonably foreseeable. When it was introduced, the bill permanently excluded from eligibility for MAID persons whose only underlying health issue was a mental illness.
During consideration of the bill, the Senate introduced an amendment to make that exclusion temporary. The House of Commons supported the amendment, and the bill, as adopted, would automatically have nullified the mental health exclusion two years later.
[English]
I want to be clear about something, which is that the government's decision to go forward with those expansions at the time was a matter of social policy. I appreciate, though, that there are those who believe that the charter required us to act in this regard on mental illness, and I want to address this point directly.
MAID is a complex and deeply sensitive topic, and there are important charter-protected interests that arise in this area. On the one hand there is the autonomy and dignity of individuals in making end-of-life decisions. On the other hand, there is the protection of those who are vulnerable and who might be at risk in a permissive regime. In its decision in Carter, the Supreme Court recognized the complexity of legislating in this area and suggested that Parliament's choices on how to balance these competing interests would be given a high degree of deference.
MAID is particularly complex in the context of mental illness. As noted in the various MAID-related charter statements, these inherent complexities are the basis for the mental illness exclusion. Some of the complexities include that the course a mental illness may take is more difficult to predict than that of a physical illness and that many people with a poor prognosis will improve, at least in terms of their suffering, which may alter or impact their wish to die. Moreover, distinguishing routine suicidality and a valid request for MAID becomes particularly challenging when suicidality may be a symptom of the mental illness that led the person to request MAID in the first place.
The MAID mental illness exclusion is not based on harmful assumptions nor stereotypes about mental illness. We recognize, as Minister Holland just said, that the suffering mental illness can cause is on par with the suffering that physical illness can cause. This exclusion is not a denial of this fact. We also accept, as I said at the outset and as I repeat here again, that the decision-making capacity of those who are mentally ill is well established.
As we have said, we do believe the exclusion should be lifted when the health care system is ready to manage the inherent risks and complexities of assessing requests for MAID that are based on mental illness alone. Our provincial and territorial partners agree that more time is needed. Medical experts agree that more time is needed. The lack of consensus on this issue proves that more time is needed.
This bill reflects the caution required to ensure the safety of Canadians and to get this right. As the interests at stake are significant and the consequences, Mr. Chair, are permanent, we must get this right.
Thank you very much.
If I might remind you, Minister, I'm the one asking the questions. If I have a question for you, as part of this committee, you need to answer it.
The second part that we need to get to, clearly, is that this particular program that you have has a lack of safeguards. Substance-use disorders, mental illness, post-traumatic stress disorder—for which your government has offered MAID to veterans—are mental illnesses, as is autism.
How are you going to square your circle with respect to irremediability with regard to those illnesses?
Thanks to both of you, Ministers, for appearing, and thank you to your officials as well. I also appreciate the opening comments from both of you.
I want to just briefly continue on the train of irremediability and suicidality.
In your understanding, Minister, is determining suicidal ideation and distinguishing suicidality not already a part of MAID assessment, even as currently applied to someone with a physical condition and mental illness?
:
That's a good question, and I do appreciate it.
People definitely suffer a great deal. I detest that, and it really disturbs me.
At the same time, we clearly have to ensure that the system in general is prepared for a change regarding medical assistance in dying. If the system isn't prepared, the consequences will be very serious.
We've made a lot of progress in the past year. It's remarkable, as I explained to Mr. Hanley, but it isn't enough.
The advance requests issue is extremely complex. For example, if a person is in poor shape, and one member of that person's family believes it's time to administer medical assistance in dying, while another family member thinks it isn't, it's the physicians who will have to make a decision. The individual won't be capable of making a decision. So there's a lot of complexity, and we're going to speak with the others—
:
No, I'm going to stop you there. Stop that; this is disinformation. Stop it.
Read the Quebec statute. You aren't being rigorous. I'm going to calm down, but your answer makes no sense.
This isn't about one member of the family or another. Under the Quebec statute, the assessment is conducted by a third party. A third party will be appointed, and that third party won't have the authority to tell the attending team to administer medical assistance in dying. The third party will be the guarantor of the person's wishes based on criteria that will have been established, and that third person will tell the attending team that he or she thinks the person meets those criteria and will request that assessment.
What are you talking about? We made that recommendation to you one year ago, and you're giving me a truly crazy answer this evening. I'm going to calm down, but I understand why we don't have a bill by now if that's how you understand advance requests in Quebec. The National Assembly of Quebec is unanimous on this point, and the approval rate across the country is 85%. People are waiting for this because people are suffering.
What are you waiting for? Are you at least going to commit, this evening, to helping us come up with a bill before the end of this parliament?
Get informed.
:
Thank you very much, Mr. Chair.
Thank you, Ministers.
Minister Holland, I'd like to start with you on the subject of the letter that was signed by seven out of 10 provinces and all three territories.
In our first panel, some witnesses were talking about readiness in the system. I am assuming that these ministers would not have signed this letter unless they had confirmed with their deputy ministers or assistant deputy ministers that in fact their system was ready.
You've had in-depth conversations with these members. You've probably had conversations with their deputy ministers. What conditions would have to be in place for you to attach your name to such a letter? You would probably want to consult with your deputy minister to get that kind of assuredness from the health care system that you're overseeing.
:
There were detailed conversations with the health ministers. Part of that was about how long it was going to take their systems to get ready.
One concern with some of the ministers, really, was a question of readiness. They acknowledged the equivalency between mental suffering and physical suffering, but a few of them were simply ideologically opposed to the idea of ever proceeding in such a way.
I think that if we were to put it off indefinitely, then we'd see no progress in the system in terms of the adoption of the curriculum or even the belief that we were moving towards that. That would leave people who are in unimaginable suffering.... We're talking about a very small number of people, but these are people who have tried everything and are stuck in unimaginable mental hell. After decades, in many cases, of asking, they are saying, “I want access to MAID”. That is a consideration here.
I am going to take issue with two of your earlier comments.
I do think, actually, that this issue has been punted down the road. It was punted down the road by two years with the Senate amendment. It was further punted down the road by one year of Bill . Now we're looking at a three-year punt.
I also take issue.... I've been on the special joint committee since its inception. I agree with the recommendation that we put forward, but we did not have anywhere near enough of a time frame to study this issue in depth. We had three meetings of three hours each.
How can you say that this is not punting it down the road? How can you say that the special joint committee had adequate time when in fact we did not?
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This, of course, was the second time the joint committee had been sitting. The joint committee, in its previous iteration, had spent an extraordinary amount of time on the subject. It was round two, if you will, for the special joint committee. We're very appreciative of their work. They did extensive work in the first round and that wasn't very long ago.
The second point was that there seemed to be a uniformity of opinion within that joint committee that more time was needed. I don't know how much time you need to study.... Once you reach a conclusion that says you need additional time, to keep studying to say you need more time doesn't make a huge amount of sense to me.
In terms of punting down the road, you can use whatever nomenclature you want. The point here is that we have to make sure the system is ready. Given the opportunity, I can talk about all the things that were done over that one-year period and why we thought they would be sufficient, but the underlying reality is that it was insufficient and we needed more time. I wish I had clairvoyance and could have known that, but I lacked it.
I'd like to turn to Minister Virani, if I could.
You were mentioning, to paraphrase the Supreme Court, that they were going to give a high degree of deference to Parliament when legislating in this area because of how sensitive it was. When Bill was first introduced, I thought there was a very reasonable charter statement issued that explained the government's initial reasons for excluding this. Then at the eleventh hour, a very consequential Senate amendment was accepted. I think that really is the root of all the problems we're finding ourselves in today.
Do you, as a minister, now have regret about that decision?
I truly believe that this decision was putting the cart before the horse—and I'm speaking as a member of the special joint committee. We have been playing a game of catch-up ever since. The law was changed in advance of the important consultation and in advance of those committee hearings. As a result, we have had to constantly shift the timeline.
Again, why didn't the government exercise that high degree of deference, as you put it, that the Supreme Court gave you the room to exercise in the first place?
:
I think there are two issues there, Mr. MacGregor. One is what deference is accorded by the Supreme Court, and then the other is your criticism of our response circa 2019-21 vis-à-vis mental illness.
Do I regret that decision? Not at all, because I think what the Senate prompted was an active discussion about mental illness and the evolution of this law and its potential expansion. The development of the MAID curriculum, the model standard and things like the oversight mechanisms that are under development are all by-products of that function. I think that's proper vis-à-vis showing equivalence between mental suffering and physical suffering and not perpetuating negative stereotypes such as that mental suffering does not deserve the same level of treatment or to be addressed, and also not perpetuating pejorative assumptions about the decision-making capacity of people who are mentally ill.
On the deference piece, Mr. MacGregor, what I would say to you is that the court has said that there's a certain amount of deference owed as part of the dialogue between the courts and Parliament. There's extra deference shown in the matter of complex social policy, and then they highlighted in the Carter decision that, when it comes to MAID, that deference is directly applicable.
What they're saying there is that they're going to allow a margin of manoeuvrability for Parliament to try to get this right when we're balancing delicate interests. I'll say to you what I said at the outset. When you have issues around the unpredictability of the course of one's mental illness and when you have the possibility of suicidal ideation being a symptom of someone's condition, while I firmly believe you can distinguish between suicidal ideation and a well considered, well-thought-out request for MAID, you have to make sure that difference and that distinction can be made. You also have to ensure that all of the health care practitioners, MAID providers and assessors have the ability to do so.
When only 40 people have had that education, I think that's not enough.
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I'll go back to Minister Holland.
If what is being referenced is the so-called model practice standard, that has no teeth. That is very different from a Criminal Code safeguard. With respect to that so-called model practice standard, there's nothing there that provides guidance on the lengths, numbers and types of treatments. There's nothing about all treatment options being exhausted by the patient.
In the face of that, how can you possibly claim that this will impact only a small number of people who've suffered over a prolonged period of time? That's simply false, and you know it, Minister.
:
Thank you very much, Chair.
I want to go back to the safeguards, because I think that's a very important conversation to have.
Starting with you, Mr. Virani, why don't you outline the legislative safeguards that are in place?
Perhaps, Minister Holland, you can then talk about the safeguards that are being put in place for the medical community in order to administer MAID properly.
:
Let me start with the legislated safeguards that are in the legislation called the Criminal Code of Canada. We're talking about track two, which is where death is not reasonably foreseeable.
You must make the request in writing. Two independent doctors or nurse practitioners must provide an assessment. The person must be informed that they can withdraw their request at any time and in any manner. The person must be informed, to Mr. Cooper's point, of available and appropriate means to relieve their suffering, including counselling services, mental health and disability support services, community services and palliative care, and must be offered consultations with professionals who provide those services. The person and the practitioners must have discussed reasonable and available means to relieve the person's suffering and agree that the person has seriously considered those means. This assessment must take at least 90 days. You can pause it. What I have heard anecdotally is that, in the context that mental illness is the sole underlying condition, it would likely take much longer than 90 days. Last, you must provide final consent immediately before MAID is provided.
All of those safeguards are legislated. These are not practice guidelines or practice standards, etc. Those are in the Criminal Code of Canada under the MAID provisions.
I'll turn it over to Minister Holland.
As I get an opportunity to talk with clinicians, doctors and nurses across the country, all of them are trying to get this right and are deeply concerned about their patients. That's why I get so upset, because I think that, as parliamentarians, casting aspersions on people's motives and trying to insinuate that somehow anybody is not caring about human life is just deeply irresponsible.
In my experience, those who developed the national accredited MAID curriculum, those who developed the practice standards and those who are in the system are trying deeply to work with people who are in extraordinary pain. When a doctor has a patient who has been coming to them for decades in unspeakable pain and that doctor says, “I can't do anything for this patient; we've tried everything,” and that patient is asking for a way out, it is extraordinarily painful to hear that.
You could have an ideological position that you don't want to deal with that, but I think that understanding and navigating this and trying to work with the provinces and territories so they have appropriate safeguards, and looking at CAMH suggestions around clinical guidelines, are entirely appropriate, because we have to make sure that those safeguards are as strong as possible and that we are only dealing with those remote and most unusual of cases.
:
Yes, there are legal and clinical safeguards that must be considered.
Shouldn't recommendation 10 of the expert panel report be referred to in the act or the regulations that will be made under the act? I think it's important to do that. I know that what we'll eventually adopt will be completely different from what we now have because we haven't come up with the final bill. However, it seems to me that, if we want to have a discussion and do good work in the short term, we should mention recommendation 10.
The other recommendation that I consider important regarding mental disorders is recommendation 16, which concerns prospective oversight, not retrospective oversight. Quebec has established a committee to monitor medical assistance in dying acts and to report retrospectively on those acts.
Consequently, there should be a prospective provision regarding mental disorders and thus an additional step that would have to be taken before acting. If the request is admissible and the patient has gone through all the steps, a committee would review the process to determine whether it's satisfactory and complies with all the safeguards, both clinical and legal. I think it's important to do this properly in the case of mental disorders, given the fact that the experts are divided on the matter. We will have to proceed this way if we want to establish a system in a calm manner.
The question I would ask is as follows.
It's all well and good to postpone passage of this bill, but, from the moment it's passed, once it has been passed by the Senate, what intermediate steps will have to be taken? What will you have to do right away once this bill is passed? That's the problem that we've had since we started this study on medical assistance in dying. We delayed action, again and again, and wound up with deadlines that were too short and requests for extension.
What will you do immediately after royal assent so that we can continue our work?
:
Thank you for answering that.
Minister Holland, I understand the differentiation between mental health and mental illness, but when I go around my riding of Cowichan—Malahat—Langford in particular sections and particular communities, it's quite obvious that many people are suffering from a mental illness. You can see it right on the streets.
I take the point of the legislative safeguards that exist in the Criminal Code, but there still is a very real concern that, because of an individual's circumstances, such as the fact that they may come from a disadvantaged population and may not have had the same access to services throughout their life, they may still be able to satisfy the legislative safeguards in the Criminal Code but they may have been sent down that path because of the life circumstances they find themselves in.
As the Minister of Health, given the great needs we have and are very evident across our country, how do you resolve that as a minister and with it being such a very sensitive issue?
:
Thank you so much for the question. I acknowledge that to be true. Often there is a direct correlation between those who have suffered the most and those who are in the worst state of mental health. Sometimes when somebody has a mental illness—which, again, is different—it can certainly be greatly exacerbated by trauma or by those very difficult circumstances of which you speak.
One of the reasons I think we need time is that we need to make sure we get that line exactly right. To the point you're making, we don't want to wind up in a circumstance where somebody has a mental illness and they push, and there was something we could have done.
We have to exhaust everything, and it can really only be at the end of the road, after we have tried everything. If we have been unable to find a solution, then I think we're left with the question of what we as a society can do if somebody has tried absolutely everything and is at the end of their rope in terms of pain and they wish, of their own volition, to end that. It's a complicated and difficult question. That's why I think we have to take time.
However, I acknowledge the circumstances you're taking about. That's one reason I said at the outset that I think those conversations with many of those disadvantaged communities are so essential, to make sure they are fully comfortable that the controls are in place and that we're proceeding in the appropriate way.
Thank you to both ministers.
My question is going to be for Minister Holland. This is an emotionally charged debate. I don't think anybody needs to apologize for demonstrating passion when they are discussing this.
I have been involved in this process since very early on, along with Mr. MacGregor, Mr. Cooper and others. We're dealing with a very specific issue and that is whether to postpone the implementation of MAID solely for the purpose of mental illness. We're not here to debate constitutionality. We're not here to debate advance requests. We can debate the morality. These discussions are going to take place in another context.
My question is this, and I put this to a witness earlier. I feel the only responsible thing that I as a legislator can do—and I think people around this table would agree with me—regardless of what side of the discussion I fall on, if I'm faced with a lack of consensus by professionals, is to postpone it to allow for further discussion.
There are two parts to my question. That's the first part. Do you agree with me? The second part is on the timeline. You have introduced a piece of legislation that postpones it for three years as opposed to indefinitely. Minister, you addressed this briefly earlier, but is the reason for doing that not to advance an agenda but to keep it on the agenda since, otherwise, it could just fall into never-never land?
Thank you.
:
That wasn't a point of order, but rather an expression of your point of view.
[English]
First of all—I know you're aware of this—the motion that resulted in this meeting taking place indicated we could have a minister, and we had two ministers show up. Thank you.
I know it's been a long day for you. It's been a tough day for everyone. It's clear how important and how difficult this issue is, but it's also clear that you care deeply about it. We very much appreciate your being here and working through all of this.
Is it the will of the committee to adjourn the meeting?
Some hon. members: Agreed.
The Chair: We're adjourned.